Happy Friday to all of You,
This might help you out as well.
Mary who follows the website sent me over a message via the “contact form” yesterday. And with her permission, she said it would be fine to share it with everyone.
Before you read her message about how she started feeling better from out of control UC symptoms, I want to wish you all a good day and hopefully a happy start to March 2014.
Take care and here’s her email with her sleeping tip:
“Your thoughts on a physical remedy-
I wanted to thank you for your blog and say it’s really helped me in coping with being a UCer over the last 6 months since my diagnosis in September. I was reading about your most recent flare and wondered though if the same thing that helped me so much would also help you. I’ve noticed that it seems like a lot of what holds true for you, seems to work for me too. I was hosptalized recently for 2 weeks for a flare that I wasn’t coming out of and I just kept bleeding, no matter how much bed rest, prednisone, and clear liquids they gave me. By the end of a frustrating 10 days, I never thought I would get better, and I started insisting on sleeping on my stomach like I normally do at home. For some reason this seems to be a miracle cure for me. I put a pillow below my thighs and under my head and shoulders, and gravity sort of redistributes all of the fluids/pressures built up in my colon/abdomen and the bleeding slows and my stomach relaxes.
The doctors seemed shocked and confused when I improved so dramatically and quickly then, and I’m wondering if this isn’t a frustratingly simple and stupid universal thing for UCers. Please let me know if you’ve ever tried/heard of this or what your results are. I’m curious. :D
Hope you are well and thank you so much again! (You saved me from Humira!)
(Thanks again Mary for sharing this!!!)
PS: I’m super interested just like Mary is to hear if anybody else has noticed positive (or negative) changes to your UC with changes to your sleeping position or other aspects of your sleep:)
So I like UC’ers. That’s been going on since 2009 I’d say.
I started site and the eNewsletter(you can join that below) shortly after being diagnosed with ulcerative colitis in October of 2008 with severe pancolitis (when my whole colon was inflamed).
For me, it was a very rough start with severe symptoms. Getting bounced from medication to medication was not easy or too helpful. But, I did meet another UC’er, changes several parts of my diet, and of course the rest is history.
Leave a comment, ask a question, take advantage of our past experiences here, use the search boxes, they are your friends to0:)
Remember while using the site that:
UC symptoms and flare ups don’t last forever and no two people are the same.
You cool with that? good!
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