I am 52 years young and am from West central Texas. I have 2 grown sons and a wonderful daughter in law,We’re expecting my 1st grandbaby, a boy on or around Nov.15th and I’m very excited about becoming a “Nana” and am counting down the weeks! lol….I love time with my family and friends and spend as much time with them as possible, it’s from them that I draw my strength and they are my support system. I am extremely blessed.
Currently my symptoms are internal pain and discomfort from inflammation and an ulcer that is currently in the left side of my large intestine, severe bloating and lots of gas with most anything I try to eat,loss of appetite,change in BM habits from day to day and bouts of nausea off and on,aching in my body from head to toe in my joints,sometimes a low grade fever that comes and goes and weight loss,lost 31 pounds in 3 wks. when my flare up began over a year ago.
Over 2 yrs ago I started feeling bad, lots of severe bloating after eating which was miserably uncomfortable, some nausea and vomiting occurred and my BM habits changed. Then sudden weight loss, so I made an appointment to see a Dr. and that’s when my not so wonderful journey of test after test began to find out what was making me so sick. Whatever was going on had all but completely halted my once fairly active life and its been that way ever since…I was tested for H-pylori, Giardiasis, Diverticulitis and sonograms on my gallbladder among a plethora of other tests. Some invasive some not….The worst was waiting for all of the results and being told they were ALL negative.
Finally it came down to finding a new Dr. and her referring me to a gastroenterologist who’s first words were “We need to get you scoped”,to which I replied after 2 yrs. I’d do whatever I had to to feel better! So on Aug. 22nd, I went through an EGD and colonoscopy, no cancer, no infection but I have UC and they sent off a biopsy of the ulcer, it came back “cancer free”. I was then told I was to go get some labs done for Celiac disease and IBD, that was 2 wks ago and I’m still waiting on those results, they were sent off to a lab in Cali.,because we have no lab here that does that sort of tests. So here I am waiting and I’m guessing they need those results before they put me on any meds so that we can cover all my issues.
Monday and Tuesday I start nutrition classes to help me get my diet on track, since I have UC and type2 diabetes. I feel like I’m headed for one heck of a life change, hopefully for the better! please tell me it gets better!
Where I’d like to be in 1 year:
In one year or less, I’m praying to be in remission and in no pain or flare up mode,on meds that work with little or no serious side effects and feeling like my old self again and being able to go and do whatever I want like I did over 2 yrs ago.I want to be able to do things with my family and friends and my grandson and enjoy every aspect of being a first time NANA ,with NO limitations! I want no more “good day/bad day days”! I want to go shopping,go for a walk,go see my parents,spend more quality time with my kids,go watch my oldest son perform in public venues or his other musician friends without feeling bad or sick! That’s where I’m hoping and praying to be one year from now!
No medications yet,So if anyone has any recommendations or helpful suggestions I welcome them…I am a little anxious about the meds used and any side effects,since I know nothing about any of them.except prednisone,which when I took it for arthritis joint inflamation it made me feel like I wanted to rip peoples faces off!! lol That was an awful feeling! So please share,I welcome it,positive or negative. Thank you!
written by Kayetlyn
submitted in the colitis venting area