I started having bad cramping an bloody poop with lots of mucus. I told my OBGYN doctor about this an she said “oh its probably hemorrhoids”. So I continued on as I was told. Now my baby is born in 4 months . I’m in extreme pain, uncontrolled bowels an having 20 stools a day. Weak sick an grey. I was admitted into the hospital. The doctors still had no idea what was wrong. While in the hospital I had a colonoscopy an the doctor said, “looks like you had UC.” They kept me 4 more days resting my bowels (no food). Which by now I think there wasn’t any in there from not eating from days before.
So I was sent home being treated as I have ulcerative colitis. Come to find out the doctor never did a biopsy. So the true conclusion of what I had was not a for sure. I went a year more before I had a biopsy and actually was scheduled to have my colon taken out due to my body not reacting to all the medications I was on. Luckily the doctor who was going to do the surgery asked me I’d been tested for Crohn’s Disease. I said no. So he said get this test done and see if you have UC or Crohn’s. Well the test came back, I was a person who had both. Crohn’s an Colitis. So all along I was having a flare of Crohn’s Disease not UC.
So I am one of those people who have fallen thru the cracks. We make to much to be able to have Medi-cal insurance. And can’t afford to have our own insurance due to pre existing medical conditions. So I’m stuck. I’ve fought with medi -cal to help me and I guess you gotta be almost dead with no money to get some help with medicine and just some proper care with this disease. I now have had to hire an attorney to get permanent disability. I’m waiting on the verdict on this. Pray I do . 12 yrs fighting this disease has been very depressing at times. I have no one to understand how I feel.
Submitted by Shannon in the Colitis Venting Area