My name is Lynsey. I am 25 years old and was just recently diagnosed with ulcerative colitis a few months ago and am still trying to get it under control.
contantly needing the washroom, still have blood in my stool and am constantly tired. Food seems to go right through me.
I was very sick and getting worse and worse all the time and I could not figure out what was wrong. I was very concerned about the large amounts of blood in my stool yet was very embarrassed to tell anyone for the first little bit. I was sick for 2 months before I got into see a specialist, I had a colonoscopy with no sedative and it was awful. It was 4 months ago I diagnosed with UC and have been on medication since. I was on prednisone for the first 2 months after being diagnosed and I will be on Salofalk (5-Aminosalicylic Acid) indefinitely.
I am still trying to accept that I have this disease and am still trying to deal with getting it under control. My boyfriend has been really great with making sure I am eating right and when i’m down and upset or depressed he always knows just what to do to make me feel better. Sometimes I will think I can get away with eating just a little bit of something bad but regret it so bad afterwards. I have recently started a food journal and am really trying hard to stop this vicious cycle. My family and friends have been great to talk to when I need them but they can only help so much because they are not living with this disease and don’t full understand how I feel. I am just happy that they have all been there for me when things get a little rough.
Something I have noticed is my joints are very sore all the time, I’m very tired and am just starting to get color back in face, I was white as a ghost for a while. The thing that scares me the most is the thought of surgery, I never want to get tp that point. I’m only 25 and its really unfair that I have to live with this forever.
Where I’d Like to be in 1 year:
written by Lynsey
submitted in the colitis venting area