So I wrote on here about a year back about me and my UC (story was called “Rough Time” (I was 17 at the time and have a severe case of ulcerative colitis). I had to stay in the hospital 2 weeks when it barely started to get 2 blood infusion, an iron infusion, and shots, etc. and all that good stuff. I’m happy to say that as of two days ago I graduated culinary college!! :) YAY!!
I’m kind of sad to say that I still haven’t resolved this problem at all. I’m on Remicade and get it every other month. Every month since I started I start getting UC symptoms and by the middle of the month I start having to be on other steroids again too. I went to see my doctor and he is very worried that I’m on the strongest stuff already and it doesn’t seem to be helping (and at such a young age). We upped the dosage to the highest it can be in hopes that my symptoms wouldn’t come back.
Weirdly enough because of stress and everything this last month, the symptoms have come back quicker than before. I’m not really sure what to do anymore because I’m a little scared. Not only is the strongest medicine not working but the other meds that I have to keep going on are affecting my life to high levels. I just got married with a (slightly) poofy face, (luckily it had went away mostly). My friends at my college graduation two days ago saw me with my normal face for the first time in about 9 months. I want these things gone but the medicine isn’t working, and I really can’t just stop what I’m doing and get surgery (I don’t want to anyway) because I have to be able to pay for my apartment (which I’m barely able to do with my work as it is). Don’t get me wrong, I think this mostly has to do with stress at the moment. But I need to know if anyone has any suggestions for me at all? What has worked for you? Anyone else basically have their doctor worried and saying they don’t really know what to do anymore?? I had to take 3 days off of work last month, i can’t keep doing that.
In need of some advice please?
written by Autumn
submitted in the colitis venting area