I am a 35 year old male. I live in the UK. I was diagnosed with UC 12 years ago, at the age of 23. I always had minor problems with mz health since mz childhood. Asthma until the age of 12, knee problems until age of 20, then UC at 23.
I am trying to put myself into a full remission after a severe flare in August of 2011. At the moment I have blood and mucus occasionally. Bowel movements 1-2 times a day.
Diagnosed with UC 12 years ago in 2000.
Contributing factors: There is probably a genetic background (my cousin also has UC), I had a bad year in 2000 – my mother was diagnosed with cancer(later died), feeling lonely(no girlfriend, no friends, family away), eating junk food a lot, I had problems at my very first work place, occasionally drinking, I was a regular smoker.
I had 4 mild-severe flares – hospitalized, the maximum weight I lost was 20% of my weight in a couple of weeks. Apart from those 4, I had number of mild, manageable flares and uncountable number of minor problems. My longest remission was about 3 years.
Last flare (2011 Aug) came after 1 year of moving to UK and quit smoking.
My family is very supportive, although they are trying, they cannot really help too much – at the end of the day you, yourself have to manage it mentally.
My life had not change dramatically, fortunately i wasn’t really bound to toilette as others – as I read here and on other forums, I always did not some sport. My favorite is kayaking, climbing, cycling.
The biggest concern is about removing my colon and about having colon cancer.
Currently, I am on SCD diet, started 36 days ago. I am recording my experiences and observations about my physiology in a XLS. (I suggest you to do that and record anything you feel, do, eat, pass..etc)
The last 36 days on SCD overall is positive, having more energy, the number bowel movements a day is stable (1-2), I have still ocassional bleeding (one started after 10 mile walking, the other after 10 mile cycling. – sport is Great! – but I was impatient and did too much too early)
Started vitamin – E enemas 6 days ago – so far so good. Bleeding started to vanish at the 4th day.
I am also doing accupuncture(electro and needles) for myself regularly. (started 3 months ago) – very good experiences.
Where I’d Like to be in 1 Year:
Salofalk tablets (2g a day 4x500mg)
Salofalk enema (4g in 60ml suspension)
Prednisone (mild flares – starting from 16mg, more severe 40mg, the maximum I got 100mg IV)
Cyclosporin – did not work, CRP remain too high
Immuran – severe side effects(vomiting and diarriah) on the 1st night – couldn’t use itThe most efficient acute help at home while you get a doctor or keep it manageable if you start it in time:Predinose(depends on the severity) injected into Salofalk enema(4g/60ml) Currently:
Pentasa granulates (4g – 2x2g)
Sylimarin seed oil
Accupuncture 2-3 times a week
Vitamin e enemas (2 times a day)
written by Donald
submitted in the Colitis venting area