Leaky Butt Syndrome :)

Introduction:

I have had Ulcerative Colitis for 9 years – it started when I returned from a missionary trip to Nicaragua in June 2004. I thought I had parasites, and sometimes still do – but after several different diagnosis including Proctitis, Crohn’s and IBS – the ultimate diagnosis is UC.

Some more about me:

I live in Virginia Beach, Va – 44 yrs – I work for a military contractor but my greatest love is animals – I rescue, volunteer and foster when I am not at work. I recently have been certified in Reiki II and hope to use this energy to help animals. I used to be very active – running 5 times a week, doing Pilates, weight training – my goal is to be able to do it again soon!

GI Symptoms:

My symptoms arise when I am active. ie.: walking, extreme urgency – sometimes diarrhea bloody w/ mucus to formed stools all in the same day. I have no control most of the time and wear protection. Sometimes I go from 5 times a day to 20 – 75% of the time it is mucus mixed w/ blood.

Leaky Butt Syndrome

I go in and out of remission -remission has never been more than 4 months. I despise this disease – I cannot walk my dogs anymore, working is a struggle every single day – I miss fun times and activities with friends.

I am on my fourth DR – he is the first one who agreed to take my colon out if I should want to – he doesn’t push Remicade, Imuran or Humira on me – he prex me VSL #3 which other DR’s would not and he actually listens. I want to cure myself and have been trying for years now – I even drank small amounts of bleach for a month and my symptoms went away for 4 months – I started running again and walking my dogs, but then they came back. I have also had all of my old fillings taken and replaced because I read that they may cause UC like symptoms. Light Force Therapy with a practicing Chiropractor brought me relief for months, but I cannot afford the $50 payment anymore – Accupuncture seemed to bring some relief but that is $75 every time – needless to say, I wish Insurance would cover these natural ways of healing instead of backing the Pharmaceutical world we live in. I don’t have a problem with DR’s as long as they listen and are open to alternative method s of healing.

I have a very supportive family and net work of friends who guide me and comfort me. I still go out and do things, but I always have a change of clothes etc…

My biggest fear is that my UC will turn into colon cancer – I plan on living a long time and want to get back some of the last 9 years that I have lost!

Medications:

I have been on all of the medications except Remicade and Imuran because I refuse to be on them. I have always lived a health lifestyle and have been active my whole life until now. My diet now consists of foods in the Paleo plan and all organic – except with some dairy now and then in the form of cheese. I took myself off prednisone – was on for 5 years straight and now only take 2 Sulfasalazine with Tumeric, B-12, Vit C-1000, Vit D3, Vit E, Krill Oil, and Garlic Oil. Was doing great for last 4 months and now symptoms are coming back again. I have discovered a possible new way to treat UC with a drug called LDN – Low Dose Naltrexone – it has proven relief in other autoimmune disease such as Lupus, Fibromyalgia, Crohns, MS and autism – some have come into complete remission. It must come from a compounding pharmacy. The reason DR’s don’t tell us about it is because it is generic – no one will make money from it. I am making contacts to get a prescription – I will try anything at this time – it comes in lotion form and in pill form.

written by Cheryl




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3 Responses to Leaky Butt Syndrome :)

  1. bev March 22, 2013 at 2:33 pm #

    Bleach…really? Wow. I had no idea.

    My great grandmother swallowed a teaspoon of turpentine once per day and lived to be 104 years old…how do you swallow these sorts of things?

    What’s in it that is so ‘good’ for a person I wonder?? It must kill bad bacteria perhaps?

    I do agree with you about steering clear of the UC meds. I am on probiotics and L-glutamine, no meds at all, and am in remission for the first time in 15 years. Can’t say as I’ve ever tried the bleach thing…I’d be way too afraid…

    Bev

  2. Lydia September 23, 2014 at 3:55 am #

    Had a similar problem for years. Just going for a walk was a big decision (would I need the loo!) then after loads of research identified the problem was probably yeast – either a yeast infection or yeast allergy or intolerance. Yeast (candida) infections are often very stubborn to shift. Had a 3 week course of Fluconazole then introduced a Probiotic Capsule containing (Lactobacillus acidophilus, Bifidobacteria lactis, Lactobacillus rhamnosus) and Coconut Oil Capsules which are reputed to mop up yeast problems – a life saver ! The latter two I continue to to take and also avoid or limit my intake of yeast/wheat based products. Have had no problems ever since and everything is now ‘normal’. Very happy to e-mail anyone my research.

  3. It helped me July 31, 2016 at 4:33 am #

    Get you mmj card. The cbd in medical marijuana will help reduce if not eliminate your sytoms. I never use any drugs until one time smoking and was issue free for 3 weeks.

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