Karen’s Severe Flare Story

I am 75 and diagnosed with UC in 2015 which I think was caused by months of antibiotics for infection after surgery.

Current Symptoms:

Bloody watery diarrhea with little stool,cramping,bloating and urgency. Awful fatigue and weakness and lightheadedness

Karen’s Story:

I am currently in a bad flare which has been going on for months. I am losing a lot of blood and watery stools. I would like to know if anyone experiences extreme weakness especially in legs during a flare. I take generic Lialda 2 per day but bump up to 4 during flare I just started taking L glutamine 2 days ago. 500mg capsule once a day. I am 75 and have moderate diverticulosis. I was diagnosed with UC in January of 2015 after experiencing bleeding. I had a colonoscopy which showed UC throughout the entire colon. Was put on Apriso but then changed to Lialda 2 pills once daily. It worked pretty well with some flares now and then and in January 2017 a colonoscopy showed no inflammation but that didn’t last. I have had had some pretty bad long lasting flares since then. Tried a 2 week course of prednisone last fall and dealt with awful side effects that lasted for months after stopping them. I am so weak and lightheaded right now during the current flare. My hemoglobin is good but my iron saturation is low because I’m not absorbing any nutrients. My doctor put me on 28 mg of gentle iron by Solgar. I find I get dizzy after taking it. If anyone takes iron how does it make you feel and how much do you take? I also started Renew Life probiotics which I’ve taken in the past. I am desperate to get the bleeding stopped as I have no energy and feel like my legs won’t hold me up. I would love to hear any suggestions from those who have gone through really bad flares. I have been miserable and tired of the urgency and bleeding.

Thanks for any help and suggestions you have.

Current Medications and supplements: Generic Lialda,L glutamine,Renew Life probiotic

written by Karen

submitted in the colitis venting area

10 thoughts on “Karen’s Severe Flare Story”

  1. Karen,

    This flare will pass.. I had a flare similar to yours, my doctor prescribed Uceris, which is a steroid similar to prednisone.
    Probiotics, I believe, make the flare worse, so I suggest not to take probiotics while in a flare.
    The food that worked for me is going with low fiber, such as mashed potatoes and butter, saltine crackers, avocados and for
    a drink Pedialyte Electrolyte Solution to get hydrated.

  2. Karen,
    Fingers crossed that you find a solution for your flare(s).
    For your iron saturation, have you asked the doctor if a round of iron infusions would be appropriate for you? That gets it right into your blood stream. Last time I had to opt for that, it was a 4 doses I think. Neither the pills or the liquid iron options were doing much good at that time. I didn’t have any bad reactions to this infusion, but I did taste the iron during the infusion process. It definitely helped my energy level and I was able to handle the flare better.

  3. I was where you are at one time. My doctor tried all the same things you mentioned, helped me very little. I actually became severely anemic. Had to had a iron infusion.
    My doctor finally got Humari approved and put me on mercaptopurine. I was so sick and exhausted all the time. I am 60.
    Within about 5 weeks I went into total remission. Of course I still have the bowel upsets you know diarrhea when I eat the wrong things. No blood in 2 years!
    I take a Humari shot once a week and one mercapatopurine once a day. It really was a life chsnger for me. I have been on it for 2 1/2 yrs now. Praying you get help.

  4. I hear you – I had the same.
    There is a book here on this site, which I wrote to help people who have a bowel still. I refused the operation while I tried to heal myself.
    Search: Cathy’s Free eBook on the home page of Atom’s site.
    Sure hope it helps you.
    So much great information on this site. You can pick which way you would like to go.
    I’m sure as you read about others and their way of proceeding you will instinctively know what sounds right for you as you read of others.
    To your recovery.

    Cathy Miller

  5. I am in a 6 month flare. My fatigue has been off the chart with difficulty breathing while doing things like showering. I just finished 5 iron infusions and am hoping for relief from this fatigue. I started Humira but it’s a rough road. Just started getting joint pain. Not sure what’s next.

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