Hi, Adam and fellow UC-ers.
I have never done anything like this before, so am a big newbie!
I have been so private about this disease for the past ten years,
but have kind of reached a breaking point.
And now it seems I talk about it endlessly. ;-) Anyway, I have UC, was diagnosed 10 years ago. I have been on steroids – A LOT. This past year has been dreadful, and I’ve basically been in a constant flare, treating with prednisone. And lots of it (did I mention that?) My doctor, who I’m not thrilled with, wants me to start Imuran. I am terrified of this for several reasons. So, have been staying on the prednisone and hate, hate hate it. But I can’t seem to get off, as once I do, the bleeding and cramping starts again.
I have JUST learned about the SCD diet (yes, in 10 years no one has ever mentioned it!) and started it almost 3 weeks back. I have not cheated at all, but basically went right into the full thing, eating most legal foods, since I was not in a bad flare up at the time, as things were still being controlled by the steroids. I’ve been feeling pretty good, and really proud of myself for sticking it out without cheating (I’m not a very disciplined person.) But, the past few days the bleeding has returned, and seems to be worsening. I am so frustrated because I don’t know 1) if the diet will work for me, and 2) how long I can let this go without upping the pred again. Or worse, Imuran. I know it is a process, and want to be able to let myself go and be on this train…but the fear is kind of overpowering. Does anyone out there have any words of advice – or comfort – for someone who is just not sure if the diet will actually work? I want it to, and will commit to it. But I feel like after 2.5 weeks eating so well my body should not be going the other direction, you know?
Thank you, Adam, for this excellent site which I have also just discovered. It really is comforting to know that others are out there dealing with this horrid mess too.
Submitted by “GLT” in the Colitis Venting Area
All of the posts from “Annonymous UC” are from ulcerative colitis people who anonymously submitted stories or Doctor Reviews, medication, supplement reviews etc… I post all these stories to the site, but they’re different from my own personal stories so hopefully this account makes more sense:) -Adam – founder of iHaveUC.com