Is Surgery the Right Decision for Ulcerative Colitis?

I am considering surgery to be completely cured of ulcerative colitis but I don’t know if it’s the right decision. Has anyone had the surgery? If so do you think it was the right decision?

I am a 29 year old female who was rather healthy until i was diagnosed with uc in 2009.I have had several flare ups since and been hospitalized a couple of times as well. I am currently on Remicade and vsl#3

7 thoughts on “Is Surgery the Right Decision for Ulcerative Colitis?”

  1. Hi,
    how is the remicade working for you? Are you getting some benefits from the infusions? There are several people who have had great success with the remicade both in the short and long term. I personally am partial to treating UC with diet, as it seems to be working well for me for over a year now. Have you looked into any other types of treatment yet? Surgery is obviously a big decision, and one I have not considered for a year, but there are many people who are very happy and live normal healthy lives post surgery.
    Best of luck to you!

  2. Hello, surgery is definitely a very big decision to make. My son is 6 years old with UC, and, his current Ped. GI. has brought up surgery a few times as a last resort when he was not doing very well and also has had two hospital stays this past year, he was diagnosed after his colonoscopy/endoscopy on April 28, 2010. He has been doing the SCD for over a month now and is doing very well on it. his stools are very formed, and we are weaning him off the prednisone right now. He also takes Remicade Infusion and his 5th treatment is coming up in a few weeks. Right now we are putting all our effort into the diet and it seems to be doing the trick. I can understand your dilema on making the choice of surgery or not. Personally, I am doing everything I can to avoid it for my son, but, whatever you decide, I wish you the best. Take Care. Linda.

  3. I was stricken very suddenly with UC and my body did not respond to any of the medications they gave me either by mouth or IV so there was no other option in my case than surgery. Additionally I have no insurance and would not have been able to maintain the drug regimen even if it had worked. On Sept 14 I had the first of 3 surgeries…this one removed my lg intestine/colon and created a temporary stoma. First part of Nov the small intestine will be brought down to connect to the anus/muscles etc and a stoma will still be in place. Third surgery in Dec will “connect the new plumbing” and get rid of the stoma/bag. So far the pain from the surgery has been less the living hell I was in. Negative part is that I have a pretty low tolerance for gross, and cleaning/changing the bag to me is totally disgusting. I just have to keep reminding myself it’s supposed to be temporary. If they screw this up and it becomes permanent, I’m gonna find a bridge to jump off or something.

  4. Hey

    I was diagnosed with UC in October 2008. Ever since then my UC has not gone into remission. The thought of surgery crossed my mind on numerous occasions. The feeling of just wanting to end the suffering and just get on with a normal life. A life that you see everyone around you enjoying. I know that feeling all too well. However, before you go through with the surgery, make sure that you have tried every possible alternative.I am currently taking 2000mg of Salazopyrin and 150mg of Azathioprine daily. The Azathioprine takes a couple of months before it starts to work. My GI increased my dosage in July and said that I will only see the results in November. I am starting to feel a lot better. The medication mated with a very strict diet and plenty of exercise seems to be working form me. I do what works for me may not work for you…I just though I will let you know that there is no going back once the surgery is done. Make sure that you have exhausted all of your options….

    GOOD LUCK and I wish you all the best!!!!!!

  5. I can tell you I know where you are coming from. I have thought ‘why not just get the damned thing out and get it over with so I don’t have to deal anymore?’ but then I feel like I’d be giving up (that’s just me) and I am going to fight it as long as I can. I find that Steriods help me the most and I have been having formed stools with minimal blood and if I upped my dosage I could probably go into remission but I hate the weight I put on with them. My only suggestion is if you are serious do some research into the surgery and what happens after and talk to your doctor about it, he may suggest other treatments first!
    Good luck!

  6. I had a similar experience. I was healthy, a competitive athlete. After my diagnosis, I was devistated. Nothing would control my flare up. When the Dr. mentioned surgery, I got excited. A cure? Awesome! But it’s a major decision, and so I did some research. Turns out that a good percentage (I think it’s about 33% of people who get the J-pouch eventually need a perm. stoma, and some percentage (I don’t remember this number) of people who get the surgery end up with inflammation in the small intestine. So, they say it’s a cure, but I wasn’t convinced. In the end I chose, like Adam suggested, to try the Specific Carbohydrate Diet SCD . It worked for me, and it works for a lot of people. Have you looked into it? I’d at least give some of the natural methods a shot before you have surgery. At least then you’ll know you surgery was a true last resort.

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