Indeterminate Colitis Proctitis – Eleanor’s Story

Meet Eleanor:

Hiya on here for some guidance ans support to my recently diagnosed diseases and help and advice about pain management and urgency

I am a single mum of 3 kiddies ans am a mature degree student currently separated from my husband of 3 years

Her Colitis Symptoms:

Blood mucus urgency to.toilet dry eyes bloating pain in abdomen

Eleanor’s Story

Hiya I am in the beginning stages of my second flare.

I have had this for around 3 months and the last flare was over a year ago which had lasted for a year and resulted in my diagnosis.

I was wondering if anyone can advisee me any tips on managing the urgency and pain and weakness as I have a high demand uni course ans placement to attend ans it’s not possible at the moment with these symptoms. This box is telling me to continue h with my story so I will try not to bore you. An recently separated from an abusive unsupportive husband which I believe was adding to the disease symptoms. I am.trying to learn to run to help with my overall health and attend a gym at least 3 times a week.

I look bloated most days and have suffered from lower back and joint pain. I am in a state of limbo regarding my diagnosis as a flex sig showed indeterminate colitis buthe biopsy results were not consistent and the ibd nurse overruled the consultants diagnosis with an ibs and proctitis diagnosis. I disagree hugely as I am now symptomatic again and she couldn’t tell me.why the blood and mucus had been an issue for over a year if it was only ibs! I am very angry with her and not sure what to do about it nowas as there is only that hospital in my area to attend.

Can anyone recommend a diet to eat in a flare?

Or what to drink?

Are prebiotic any good? Tablet or the drink form?

Does anyone have any advice for me to ease this pain?

Thanks for reading this sorry if it’s all over the place and confusing!.

Currently using mezalasine rectal foam. Immodium. Buscopan and paracetamol

Some Medications / Treatments:

I avoid all green vegetables high fat foods and caffeine when flaring.
I try to exercise daily

written by Eleanor

submitted in the colitis venting area