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In High School and in Pain

Introduction:

I am in high school. I wrestle as well as do other sports and activities in and out of school. My life has slowed down tremendously since my diagnosis.

Current UC Symptoms:

cramping
joint pain
multiple bowel movements
mouth sores (temporary)

My Story:

Ulcerative colitis is the first major thing that has happened to me in my life.  I mean I’m still in high school trying to go through and make my mark but it kind of sucks when your hit with a diagnosis like this.  I mean I turned 18 just in April. I was going to go to states for wrestling even though I did have these symptoms I dismissed them because I generally don’t care to much about health.  While I was on vacation in New York I had such intense pain that I had to be admitted into the hospital and then I was just stuck in the hospital while states for wrestling was going on i was supposed to go and basically wreck everyone when i was hospitalized and not allowed to be able to go. Although it is pretty cool that i basically have a ticket to stay home from school anytime i want it doesn’t come cheap.

prednisone short fuse

While it is extremely hard to bounce back

after not being able to lift or play sports

for a couple months the thing that has

affected me the most is the prendisone.

My family hates it because I already

have a short fuse and dont like

to be messed with in any way.

This medicine cut this fuse in half at least. I get angry and have blacked out on certain occasions when people just keep arguing. It is very easy to get caught up in anything and I cant wait to be off of it.

The thing that bothers me about hospitals however is the doctors always having to check out my butt. It creeps me out that they are so calm about it. And I had a chronic fear of needles before my first hospital stay which was a week long and it was caused by barbecue food which I happened to have on the second day of February break so I was hospitalized for the entire vacation. Anyway they stuck me with everything known to man after the first couple days I got over it but I mean I was shot more than 8 times the first day for everything from tuberculosis to blood tests.

From all this the thing that concerns me the most in simply the what if’s. A big question i have is that some people say you cant drink, is that true because that sucks by the way. And what happens if i have a flare during school or later on in the workplace it seems like a horrible thing that could happen. So thats all i have nothing else.

Where I’d Like to be in 1 Year:

I would like to still be in school and have no symptoms anymore.
Colitis Medications:
I have been on 6mp and it works alright i still have lots of cramps
prendisone however is the best for getting rid of symptoms however it has the worst side effects

written by Rob

submitted in the Colitis Venting Area