Hi, I’m Stephanie. I’m a few months shy of turning 30. A lot of people usually start to freak out about this time in their life but not me. 28 was a crazy year filled with loss of loved ones, friends and family having babies, my cousin getting married, and a new job description at work. Oh yeah- and being diagnosed with UC a week before my cousin’s wedding in July. 29 was a welcomed change but I’m still looking for more. I’m hoping by the time 30 comes along, I’ll have more of a handle on this new me.
Some more about me:
Up until August, I had never swallowed a pill in my life (I chewed Prednisone for the first few weeks). This was just one of the many things that I got over.
If You Don’t Know Where You’re Going
I used to have anxiety about trying new foods but after I had a lot of my favorites and safety foods taken away from me, I got past that pretty quick. That spilled over into other parts of my life as well. I also grew a lot stronger in my faith which is the silver lining I’m most grateful for. For all of these reasons, I’m never unhappy that I got UC but I do get upset now and then that I have it (if that makes any sense).
I’ve been feeling ok for the most part. I had a bit of a flare up in January and was put back on Prednisone for a short time and upped my daily dose of maintenance meds. My trips to the bathroom have gone back to normal but I still don’t feel there just yet. I recently had my check-up after my flare up and all of my blood work looked good. That, combined with my toilet talk, resulted in my doc saying my UC seems to be under control. I don’t feel quite as in control.
I’ve tried to gain control through understanding. I’ve been doing a lot of reading up on this over the last few months but the most helpful resource has been a fellow UCer. Looking at this site seems to confirm the trouble my doc has in saying for sure what may be UC symptoms and what might just be related to other things. Everyone seems different. So my questions for the group, how long was it before you figured out what worked for you and what was your normal? Are there any books or other resources you can recommend that helped you understand all this? Any help is greatly appreciated. Here’s to all of us feeling well!
written by Stephanie
submitted in the colitis venting area