Skip to content

I Have Ulcerative Colitis Since 2009 and This Is My Story

Introduction:

I’m Marko, 22 year old male from Romania (Eastern Europe, hihi). Have colitis since October 2009 and am currently on the SCD and feel great, almost symptom free.

Symptoms:

Gas, a bit of blood. Nevertheless, I poop once a day, which I find great.

Marko’s Awesome Colitis Story from Romania:

Hi guys.

I’m Marko and I’m 22. Been having UC since 2009 and took the following medication:

Asacol, Salofalk, Prednisone and 6 Remicade infusions. My doctor insists that I should keep doing Remi on a constant basis, every other three months, but I don’t want to, I’m too afraid of that possible cancer side effect. And frankly, I’m tired of meds.

Here it goes:

It was 2009, and I stared noticing blood on the TP. Didn’t give it importance at first, but after a while I started worrying because the quantity kept increasing. Went to the doctor, had a colonoscopy, and BAM! ulcerative colitis. I had no idea what that was, I was just happy it wasn’t cancer (internet cand do more harm sometimes). About 7 cm of the colon was damaged by UC. The doctor didn’t take it seriously and gave me some mesalazine pills, 3×500 mg/day, which I later learned were almost irrelevant. Symptoms didn’t go away, so I went to my family doctor, and he gave me 7 Salofalk enemas, to insert in the rectum every night before sleep. I did that and everything was good for about a month. Then, it came back. Went to the original doctor who diagnosed me and he told me to keep taking them pills he gave me and eventually everything will be alright, because “7 cm are nothing, you are almost healthy”.

A weird thing with my colitis is that I almost never have diarrhea. It’s just blood and a hard stool. Now where was I? My symptoms came back, and for about 7-8 months I kept having 3-4 solid stools/day with industrial quantities of blood. Went to another doctor, had another colonoscopy, he prescribed Salofalk enemas again, this time 4×7, a whole month of treatment. They didn’t work, so I kinda panicked. That doctor is quite popular around here, thus he is very busy and doesn’t have time to treat his patients properly. So I went to another one, had ANOTHER colonoscpy (after about 1 month) and what do you know, my colon was now 70 cm inflamed. It was the end of the world for me. He prescribed Prednisone and a lot more mesalazine. That sort of worked, but the bleeding stopped randomly for a week, and then it came back. He looked at me and said: ok man, we have to go with Remicade, because we can’t stop the bleeding. I accepted, and after the first 3 infusions I got my life back again. The summer of 2011 was awesome, I actually thought I was completely cured (what a fool I was). Had some booze every now and then, ate what I wanted, started going to the gym, gained some wight – my life was great. Had another 3 infusions for maintenance, but in September, it came back once more, uglier than ever. The first morning stool was just water+blood, the second was solid+blood, and the other 7-8 were just blood and gas.

It was the point when I started considering SCD. So I started three things:

1. Acupuncture for stress management
2. Salofalk enemas – because they worked the first time
3. SCD

And it stopped. My symptoms actually stopped until January, when they returned (I was cheating with potato chips, 1 beer/weekend and a burger every now and then) So I did another set of 9 enemas + SCD from the scratch, with the intro diet and all that, and now here I am, having one hard stool/day, a little bit of blood but quite a lot of gas. I also take Omega 3 fish oil and probiotics, which seem to help, even though I started about 2 weeks ago.

specific carbohydrate diet europe

Marko with Friends on and doing the SCD Romanian Style!

And now my question. I LOVE bananas. I used to eat ~5/day. But since SCD and since I actually stopped cheating (January), I believe they do me harm. I tend to notice more blood and have more gas if I eat more than one/day. And yes, they are always ripe. Do any of you guys have trouble with bananas/fruit in general?

Also, how do you feel about pomelo? I love it, but I’m not sure if I’m supposed to eat it.

Thank you for reading my story and I hope that my English was understandable.

P.S.

In December I was diagnosed with mild scalp Psoriasis, which literally ended my world once again (I am already sick on the inside, and now outside too? What the hell do I have left? – these were my thoughts at night). But since SCD, I haven’t had a single Psoriasis flare up, my scalp is clean, I have great skin, feel awesome and am stress-free.

I believe that SCD done RIGHT is the answer, and not only for UC.

 written by Marko

for more information on SCD and the Specific Carbohydrate Diet – click here