I am from Jordan I have been diagnosed with multiple ulcers in my colitis back in 2003 and it’s moderately active, but for two years before my diagnose I suffered from the symptoms not knowing the reason , bleeding, lost of appetite ..etc
So when I was first diagnosed I had a name for my weakness at least which I thought was normal and I started to forget how it feels to be healthy!
At the beginning of my UC treatment journey I was prescribed to take pentasa 6 pills a day, besides Imuran , and Cortisone for couple of months and folic acid as I was losing a lot of blood over the two years which caused me severe anemia , therefore when I got really weak and pale my family started to notice me as I was neglecting my self and too shy to talk about it ! So first time I didn’t do a colonoscopy but the doctor diagnosed me with severe anemia and gave me only vitamins, which did not work for me, so two months after I went to a specialist as I was entered immediately to the hospital and had a colonoscopy and this is when I knew, at first I really didn’t get it, as I was basically illiterate in that domain, for someone like me perfectly healthy and suddenly crash down so why would I know! But eventfully I had to , it took me about 5 years to fully understand what I have as you become your own doctor when you have a chronic disease , I couldn’t understand the part that every month I go to the clinic to get my prescription and ask the doctor would it cure and he gave me the same exact typical answer ‘no it won’t cure your UC the medicine is only to reduce the symptoms ‘ So I understand that it’s something I have to live with for the rest of my life and cope with it , but I really want to take control of it and not let it take over my life as I am still in my twenties and have a full life ahead of me , so I got recently engaged , but didn’t tell my fiancé about my condition , how would he understand , it took me almost 5 years with living the UC to fully understand what UC is all about , not sure if anybody in the same situation, but I just don’t want him to see the sick part , as it makes me feel good and healthy and not different that fact that he dose not know , so if I tell him every time I may use the bathroom he would think it must be her UC ,so I never complain about it or even mention it but it’s kinda getting wired for me not telling him now that we are getting married soon, eventually he might notice in case I got a flare up, as it’s way too embarrassing for me to share such thing , therefore I am always keeping healthy as I recently found out that a healthy diet can actually help ! So I still didn’t find out the perfect one for me I already know that diary product and fried food are a big no no in our condition , so I am starting to cut down the bad food for me as I also cut the pentasta which I have been taking for the last 7 years , what’s the worse could happen I already have flare up with the pentasa every now and then , so finally a healthy diet is what I believe in , also trying not to think of my UC can help , as if I am normal but I need to go to the bathroom more frequent than normal people .
I was wondering if anybody had a colon therapy before and would it help or cause more damage!?
Do you have UC and you are way to shy that you don’t want your other half to know your weakness so looking health in front of his eyes will actually make you feel healthy?
انا من الأردن و اعاني من اتهاب القولون التقرحي ، في حالتي اعاني من سهال مصحوبا بخروج الدم مع البراز. لقد تم تشخيصي في عام 2003 و لكن قبل سنتين من التشخيص عانيت من الاعراض دون الذهاب الى الطبيب و نتيجة الاهمال ادت الاعراض لاحداث فقر في الدم لدرجة انه تم ادخالى الى المشفي و تشخيص حالتي بهذا المرض المزمن .
هل هناك احد من العالم العربي يود مشاركتي ؟ هلو توصلت الى حمية مناسبة تود مشاركتها معنا ؟ و كيف تتعامل انت مع المرض ؟