Hi! I’m Zoe from the UK and I was diagnosed with UC 1 year ago. I need to some advice and also to be able to talk to people who understand.
Current Colitis Symptoms:
Sudden urge to use the toilet, yet when I get there I don’t pass much…(anyone else do this)
40 minutes after eating I have the urge to go to the toilet. (anybody else?)
Passing wind frequently
Hot sweats during the night
Hi everyone, this is my 1st post so bear with me.
Firstly, I can’t tell you all how relieved I am to be able to find a site about UC and maybe get to talk to people who understand.
I was diagnosed a year ago to this month, after years of explaining to a GP and just being told the usual, its stress, its what you eat, my symptoms became far worse. I was going to the toilet around 8-11 times per day and bleeding. It took 8 months after that to finally have a flexible sigmoidoscopy, this showed i had ulcerative colitis. I was then put on Pentasa slow release tablets to take every day for life, and also Asacol foam enema for when i bleed. I now use the toilet between 2-5 times per day.
What i really want to know is should i be in good health between these bouts or will my bowels always be as they are. I cannot remember the last time i passed a normal stool, it is always diarrhea, most often than not there is blood in it. I thought once i took medication daily i would be OK and not have any symptoms at all and pass normal stools and lead a normal life, but I’m not.
Whenever i eat anything whether its a light lunch to a meal, I always pass a lot of wind within half an hour of eating and within the hour i have to run to the toilet, but feel as if they have not quite emptied.
I very rarely get stomach cramps, I do get night sweats some nights.
I just need to know if this is all normal. I have noticed caffeine, onion, all diary and alcohol make me bleed from my bottom so I totally avoid these, so why am I still so unwell?
Any suggestions, advice or someone who understands would just cheer me up !!
PS: also is there a neutralizer that is recommended for the condition we have to spray after using the toilet in public places as its very embarrassing.
thank you for reading my little problems xx
Where I’d like to be in 1 year:
written by Zoe from the UK
submitted in the colitis venting area
Hey Zoe, here’s a link to the Colitis Flare Survey, which has some great questions and answers from 157 other UC’ers from the site, there’s one particular question that I think will answer alot of your questions – How do you know you have entered a UC Flare? What starts to happen to your mind and/or body? I think if you read through the survey, you won’t feel alone with the stuff you’re going through, here’s the link to that page: https://ihaveuc.com/157-patient-ulcerative-colitis-flare-survey-results/
Also, another UC’er Angie wrote a story a few January’s ago about night sweats, you can read all about that too right here: https://ihaveuc.com/now-what-night-sweats/
– Adam Scheuer