Hi Everyone…
My name is Amanda and I was diagnosed with UC in May of 2010. I had symptoms for at least 5 years prior to getting an official diagnosis.
I didn’t realize what an impact on my life this one
colonoscopy and dr.’s appointment would have on me.
I was in and out of a flare for a year, experimenting with asacol, canasa, apriso. I felt like they all worked for a little while and then my symptoms would slowly come back.
I realize now I had no idea what a flare was until this past March when my body felt like it was just failing me. I decided to eat as a little as possible so that I could finish out the school year as a teacher. I was in bed most of the summer and lost a lot of weight. I wanted to go back to work and not have to worry about running to the bathroom so I went on the SCD diet. At this point I was being stubborn about going back on medication because I did not want to be 30 years old and have to pop pills the rest of my life.
Well, the diet has definitely worked for me. It’s a lot of work and was extremely difficult in the beginning, but I am proud to say I have been on it for 80 days now and I have now adapted it as a lifestyle change. However, it was not getting me into a full remission so with some resistance I went back on meds.
I am currently taking Canasa and Lialda. I still have good days and bad days. I feel like my emotions play a big role in my colitis. I made a huge decision to join Team Challenge for Crohn’s and Colitis. I have been training the last 14 weeks to run a half marathon in 2 weeks in Vegas-how incredible. I definitely cannot keep up with most of the other team members because I am still sick, but it is the best team to be a part of…..everyone understands! I do what I can and hang onto the hope that next year I will be able to run the whole thing…
Hopefully, raising all this money will help researchers find a cure for all of us!!!!!!!!
Does everyone else get the worst cramping???
I mean to the point where you don’t feel like you can move an inch or even take a breath? This is quite embarrassing when you are speaking with someone and you feel the cramping coming on….it’s quite challenging to say the least.
This website is amazing and there are so many incredible people living with this disease. So glad we have a place to vent….
My Medications and Treatment:
Lialda-4 pills a day
Canasa-at night
SCD Diet
