20 Responses to I Am Going to Beat UC – Fecal Transplant or Jpouch

  1. Magnus November 5, 2012 at 2:36 pm #

    Amen!

    Fecal transplants sounds like a great option, and hopefully soon standard treatment for UC. Keep your promise and keep us up to date about how it goes! It’s very interesting:)

    Stay Blessed!

  2. bev November 5, 2012 at 5:28 pm #

    OMG!! You are so freaking wonderful Kaitlin! Fabulous post!!

    Good on you for trying this fecal transplant. It will work…I just know it!! It’s all about good bacteria and probiotics. We have to actually heal our colons, and drugs do not do that. I have attained COMPLETE (finally) remission just with probiotics. I had to stop taking asacol, which I took for 13 years straight, because not only wasn’t it working, but it was making me even sicker in so many ways…more bleeding, looser, worse pain and cramping, nausea, and the list goes on. The specialist told me that all those things were symptoms of the UC…BULL!! It was the drugs!! When the specialist recommended steroids, remicade and imuran, I said…forget it! I read all about the side effects of those drugs and there was no way I was going to try them. Every drug eventually stops working with UC because the drugs don’t CURE it. The only way to cure it is through repopulation of good bacteria into our colons. Kaitlin…you are doing the right thing! Fecal transplant and probiotics ALL THE WAY!!

    Please, don’t consider the surgery just yet. I know you’ve been through the gamut, and what you said about this disease always seeming to interrupt our lives…we’ve all been there. It is a HUGE pain, this awful so called disease.

    I am sure this is going to work. I was going to have the transplant as well, but it took so long for the specialist to call, that I had already cured myself with the probiotics and L-glutamine (which heals the mucosa of the colon).

    Great luck to you!! You ARE GOING TO BEAT THIS!! Get this tranplant and ask the doctor if you should take probiotics afterwards, or even before and during, okay? I think you are supposed to, but I’m not positive on that. Heal that colon!

    Cheers girl!
    Bev:):):)

  3. joanna November 5, 2012 at 6:58 pm #

    hey girl!! i hope the fecal transplants help you. how many are you doing? i know the typical amount i’ve heard is 30 transplants- one per day and then you taperto once per week, once per month until you have no symptoms. it’s a slow process since the whole colon is damaged and requires a lot of help, but you can do it if you stay dedicated. you really need to find a reliable person who can be a donor since it’s a big commitment. i ended up doing 8 transplants at home but i got much worse unfortunately. i was a vegan and my donor was a meat eater so i think this might have something to do with how sick i got.

    post back if you start doing them. i’m curious to see if it will help.

    • Kaitlin November 5, 2012 at 7:54 pm #

      Hey Joanna, I am doing the fecal transplants for 10 days, and today was day 2. So far I have not seen a difference… which is sad because of how nasty they are… My doctor told us that if it does not work in 10 days, then we will know my colon is officially “uncureable”, and I will have surgery. Im ready:)

      • joanna November 6, 2012 at 2:30 pm #

        yeah, i agree that it is quite unpleasant haha it’s easily the grossest thing i’ve ever done in my life. blending poop every morning is not something i will ever do again… especially since it didn’t help me. do you have a doctor doing it for you or do you have to prepare everything yourself?

  4. uma November 5, 2012 at 7:15 pm #

    Probiotics has put my 22 year old colitis into remission for more than 2 years without a symptom. IT is Garden of life Primal Defense. I also took slippery elm and boswellia too, not anymore as things are fine now. The fecal transplant should work. Good luck and best wishes.

  5. Kristin
    Kristin November 5, 2012 at 8:05 pm #

    I agree with Bev! What an inspiring post! Your strength through this horror is admirable and encouraging. Good luck on your next journey and please keep us updated on your progress. My daughter is pretty successful on SCD but if ever she were not I would do fecal transplant before I EVER put her on prednisone again. Good luck. I’ll be praying for you! :)

  6. Lisa OH
    Lisa Kapp November 6, 2012 at 6:11 am #

    Hi Kaitlin. I like your spirit! You are a fighter and no way is this crazy UC gonna get you down! I was diagnosed Dec 2011 & by Feb 2012 my colon became toxic, so out it came. I’m waiting on the 3rd of a 3-step jpouch surgery. If I had had the chance to try other things before surgery, I definitly would have, like the probiotics (listen to Bev, she knows what she is talking about), SCD diet, etc. It is great that you are doing the fecal transplant, I hope it works. As for surgery, it’s rough at times, but it is AWESOME not to feel sick. I can’t say I miss Mr. C or Mr. R., and things are going well so far. If you have any questions about that route, hopefully you won’t have to go there, please feel free to ask!!!

    Good luck,

    Lisa

  7. Justin
    Justin November 6, 2012 at 11:46 pm #

    Hey Kaitlin! Im sorry none of the medicines helped :-( but you have such a strong attitude you are gonne kick the uc in the ass lol. I hope the fecal transplants work. I wish i could have tried them them but like Lisa my colon became toxic and had to have emergency surgery. My colom ruptured during the surgery and i got sepsis and massive infection it sucked. Im not gonna lie the surgery was rough but it is soooooo nice to have all the uc symptoms vanish. I would just say make sure you have exhausted all other options before you go under the knife. Definitely keep us updated and i hope you get some relief soon! :-)

  8. Tammy November 7, 2012 at 8:02 am #

    We at Santa Fe FCU miss you and wish you a speedy recovery!! We love you and are praying for you!!!!

  9. Terri November 7, 2012 at 2:32 pm #

    Kaitlin’s condition worsened and they are preparing her for the first of three surgeries for a J-pouch which will take place tonight in Dallas. Prayers are appreciated for my precious niece!!

    Thank you!

  10. Buffy November 7, 2012 at 5:25 pm #

    Kaitlin, we are praying for you!!! I am so inspired by your faith and fabulous attitude! I have a wonderful book for you to read written by a friend of mine who had rectal cancer and had to have the surgery. It’s called Flying High and that totally describes what you have done through this journey!! We love you and look forward to your continued testimony of an everlasting God!!!

  11. Diana Johnson November 7, 2012 at 7:21 pm #

    Kaitlin,Praying for you as you go through the surgery. May you feel God’s presence and His peace in your life. Also, praying for your family as they watch you go through this!

  12. Lisa OH
    Lisa Kapp November 7, 2012 at 8:00 pm #

    Sending healing thoughts your way…..

  13. Robyn Goss November 7, 2012 at 8:40 pm #

    Kaitlin,
    We are praying for a safe surgery. You are such a strong christian and I admire you for staying so strong through all your health balttles. Your blogs are amazing. Sending lots of prayers from Canyon!
    The Goss Family

  14. Teresa November 8, 2012 at 8:16 am #

    Kaitlin you are such a strong person, my thoughts and prayers are with you.

  15. Kristin
    Kristin November 9, 2012 at 1:42 pm #

    Praying!!! Please keep us updated!

  16. Bianca November 27, 2012 at 7:58 pm #

    My doctor told me that once I’m about 24 or something like that, my UC will calm down. Because just like you are, my body is changing. Hormones and stuff. That’s why our UC can’t go into total remission yet. I hope to survive until then without any surgery. But even if I do, it’s only the last foot of my colon. Not the entire large intestine. How much of your intestine is inflamed?
    I hope you get better and your transplant works for you. Good luck!

    Bianca

  17. Celeste October 28, 2013 at 5:34 am #

    Hi. Just read this now. How are you Katilin? No update in a year, so I am very curious and hoping you are well.

  18. Salsaflamenca February 4, 2016 at 4:45 am #

    Hello, I am also wondering how you are doing Kaitlin, did the fecal transplant work?
    I really hope it did! Were you able to get off remicade?

    Uma, I find this wonderful you got into remission for so long with probiotics, slippery elm and Boswellia. How much do you take per day?

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