My name is Damien I am 20 years old and I battled with ulcerative colitis since I was 13 and I am living a normal ish life now.
Well I now have a j pouch and has had it for a year or two and it is working great so far I have pain but no where near what I had experienced before the surgeries.
UC has ruined my life.
It caused mental pain as well as physical. I dropped out of high school, love of life left me cuz I was always in the hospital, had a dependency on pain pills cuz had such a high pain tolerance and so much hospitalization. Finally I have kicked the drugs and hurt still but I am afriad of having a dependency of pain pills again.
My family and real friends flipped there lids so to speak.
The reason I am hear though is because if Remicade is not working, and you have the option for j pouch – do it. It’s worth getting cut open. Believe me, and you get a bad ass battle scar. But I think I might have Crohn’s Disease too. I found this website because I just came from the bathroom and had the red blood circles if you know what I mean.
The j pouch is best decision I made, better then remicade. By the way, 5 years of Remicade worked great then my body was like “haha I’ll work around that” and it stopped working. And if I am to die I want people to know that the j pouch is the best thing that happened to me during this time and it is scary but do it, it will better your life.
And now I’m sorry I must end this cuz tears rolling out blinding me cuz I have two markers for Crohn’s out of 7 and did surgery anyway and glad I did but I think since I most sure have Crohn’s now that it has spread and I will start dieing again. But if you only have UC, the j-pouch is a sure way to have a normal life again. And you can enjoy all the foods you once loved.
written by Damien
submitted in the colitis venting area