Humira and SCD for Colitis?

Efim. Living in NY, 40 years old. Living with UC for 13 years. Leading a very stressful life. Currently on Prednisone 15 mg, started the SCD recently.
My Symptoms:
ongoing stomach pain, weakness, fatigue, diarrhea, and hemorrhoids.

My UC Story:

I have been diagnosed with UC 13 years ago. The leading cause of my disease is probably stress. I am a very stressful person and take things close to heart. The first ‘symptom’ I had was seeing red blood in the toilet. Obviously, I had gotten worried and decided to go see a specialist. He prescribed me some meds named Pentaza (similar to Lialda) and said to go home. Over the years, the disease developed even more and I had started experiencing worse symptoms such as pain/discomfort, constipation, bleeding, frequent unexpected visits to the bathroom. Every time I ate something, I immediately had to rush to the bathroom without even being able to digest the food fully.
Soon enough I realized the meds the doctor prescribed weren’t effective at all and I felt like an experiment in the doctor’s eyes. He just kept feeding me different meds and seeing how I would react. My most frightening visit to the doctor probably occurred here in the U.S. when my doctor told me its meds for life, without any actual solution. My morning routine changed from eating breakfast to eating pills. I took Asacol for a short period of time but that didn’t do the trick. After about 4 years living with the disease, I decided to turn to alternative medicine for help. A friend of mine started giving me some herbs to boil and drink 3 cups a day. After about 2 weeks with the herbs I felt much better for a change. I didn’t run to the bathroom as often and had pain only when I ate something really heavy. As all good things end, my body got used to the herbs and they didn’t seem to be working anymore.
A year and a half ago was my worst flare up. I had to stop working and spent each night close to the bathroom. A few days after I started taking Prednisone which has been helping until about one month ago. My doc recommended tapering off and currently I’m on 15 mg.
I just started the SCD diet 2 weeks ago and so far I’m not seeing any change. My bowel movements are the same, with even more mucus than usual. Its come to the point where a sip of water causes my stomach to hurt. I went to my doctor today and he wants to give me Humira. I know that Humira works similar to Remicade but I’m worried it might interfere with the diet.

Humira and SCD

Question: Has anyone tried Humira while being on the SCD diet?

Where I’d Like to be in 1 year:
Healthy, having my life back together again.

written by Efim

submitted in the colitis venting area

5 thoughts on “Humira and SCD for Colitis?”

  1. Hi, Efim. It’s good you’re trying the scd diet, don’t give up and do continue your medications until you get things under control. Sometimes our bowels just need a good rest so eating smoothies, yogurt, soft foods in small doses may help. Don’t give up on the natural supplements either like probiotics, fish oil, turmeric, l-glutamine, aloe vera juice, there are many out there that can help, you just have to find the right combination for you. I used to be on Humira and it did help but as we are all so different, I was having bad side effects from it and had to quit. Good luck to you, my friend and hang in there.

  2. Hi Maggie!
    Thank You very much for your response. I am drinking fish oil but according to the SCD diet, I can’t have aloe vera. What kind of side effects did you have from Humira?

  3. Hi Efim,

    I myself tried Humira, but I stopped taking it right before I began the SCD diet. It’s been three years now come August that I’ll have been using the SCD diet, and I guess I can’t really say that I was ever using both Humira and the SCD diet at the same time, BUT, my guess would be that there’s not much of an effect of the humira on the SCD foods. That’s just my guess, but I doubt a clinical study will be coming out anytime soon on this unfortunately, hopefully I’m wrong of course.

    Best of luck to you, I hope that you are seeing some relief in the past few days.

  4. Hi Efim – I also had serious side effects on Humira. I was diagnosed with UC 37 years ago ( I am 47) and have tried every treatment available. Everyone is different and every treatment or choice of diet works differently. I was blessed to have 7 years UC free thanks to Remicade and now 5 months UC free thanks to Humira. While on Remicade, I developed Lupus like syndrome and while on Humira, I developed MS like symptoms, so nothing is perfect. Best of luck.

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