Efim. Living in NY, 40 years old. Living with UC for 13 years. Leading a very stressful life. Currently on Prednisone 15 mg, started the SCD recently.
ongoing stomach pain, weakness, fatigue, diarrhea, and hemorrhoids.
My UC Story:
I have been diagnosed with UC 13 years ago. The leading cause of my disease is probably stress. I am a very stressful person and take things close to heart. The first ‘symptom’ I had was seeing red blood in the toilet. Obviously, I had gotten worried and decided to go see a specialist. He prescribed me some meds named Pentaza (similar to Lialda) and said to go home. Over the years, the disease developed even more and I had started experiencing worse symptoms such as pain/discomfort, constipation, bleeding, frequent unexpected visits to the bathroom. Every time I ate something, I immediately had to rush to the bathroom without even being able to digest the food fully.
Soon enough I realized the meds the doctor prescribed weren’t effective at all and I felt like an experiment in the doctor’s eyes. He just kept feeding me different meds and seeing how I would react. My most frightening visit to the doctor probably occurred here in the U.S. when my doctor told me its meds for life, without any actual solution. My morning routine changed from eating breakfast to eating pills. I took Asacol for a short period of time but that didn’t do the trick. After about 4 years living with the disease, I decided to turn to alternative medicine for help. A friend of mine started giving me some herbs to boil and drink 3 cups a day. After about 2 weeks with the herbs I felt much better for a change. I didn’t run to the bathroom as often and had pain only when I ate something really heavy. As all good things end, my body got used to the herbs and they didn’t seem to be working anymore.
A year and a half ago was my worst flare up. I had to stop working and spent each night close to the bathroom. A few days after I started taking Prednisone which has been helping until about one month ago. My doc recommended tapering off and currently I’m on 15 mg.
I just started the SCD diet 2 weeks ago and so far I’m not seeing any change. My bowel movements are the same, with even more mucus than usual. Its come to the point where a sip of water causes my stomach to hurt. I went to my doctor today and he wants to give me Humira. I know that Humira works similar to Remicade but I’m worried it might interfere with the diet.
Where I’d Like to be in 1 year:
Healthy, having my life back together again.
written by Efim
submitted in the colitis venting area