How COVID-19 Interacts with Ulcerative Colitis (Who has 1st Hand Experience?)

Ulcerative Colitis medications and COVID-19
Final results of the RAND appropriateness panel for the use of medications to treat IBD in the setting of SARS-CoV-2 or COVID-19. 5-ASA, 5-aminosalicylate; 6MP, 6-mercaptopurine; AZA, azathioprine; anti-TNF, anti-tumor necrosis factor; Bud, budesonide; COVID-19, coronavirus disease; IBD, inflammatory bowel disease; MTX, methotrexate; Pred, prednisone; SARS-CoV-2, severe acute respiratory syndrome-coronavirus-2; TOFA, tofacitinib; UST, ustekinumab; VEDO, vedolizumab.

What should we all be making of the Corona Virus (COVID-19) and our respective IBD/ ulcerative colitis?

I most definitely do not have all the answers to that tall question.

But, together, I’m sure we can come up with some useful ideas.

The graph listed above I found earlier while searching on PubMed for some recent studies involving IBD and Ulcerative Colitis and the Covid19 virus. You can go to the webpage with this same chart here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7194599/figure/fig1/

I would definitely encourage you to read the whole study to give you an even better understanding of what some gastroenterologists believe to be the case, here is that link: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7194599/

Big Disclaimer: make sure to talk to your doctor if you have any concerns over anything in the graph or study from above.

As the overwhelming majority of UCers are using some type of medication to help control their symptoms, you have a good chance of seeing your medication listed with some recent opinions by doctors and scientists regarding how the virus may affect/effect you. Now bear in mind that not all the possible UC medications are listed, but there are quite a few.

What would be really interesting to learn is what you have been told by your gastro doctor, or the doctor who is treating/working with you.

And, of course it would be great to hear how some UC’ers have done with battling both UC and Covid-19 at the same time? Here are a few questions:

  • How has Covid-19 changed the way you manage your ulcerative colitis?
  • What are some interesting ideas you have learned from your doctors about covid?
  • Any bits of advice that is covid-19 related?
  • If you have had covid, did it affect your UC symptoms?
  • Heck, what was covid like if you did have it?

It has been such a wacky year filled with lots of curveballs. I’m sure it is not just me who had plans fully derailed by the effects of the coronavirus. Maybe you had some lifechanges directly as well.

Stay safe everyone, and as more information on the Covid/UC topic becomes available, I’ll do my best to keep updates.

Happy Thanksgiving to the Americanos and wishing you all a nice week,

Adam



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10 thoughts on “How COVID-19 Interacts with Ulcerative Colitis (Who has 1st Hand Experience?)”

  1. My UC has been in total remission since I started taking methadone.
    While I understand it has not been authorized for this use, I heard about it through the grapevine-and I have not felt this good in years!

    Has anyone else tried or heard of this miracle, and why have there been no studies involving methadone?

    Thank you and Happy Thanksgiving to all!

  2. Wondering if someone can explain to me the “appropriate” and “inappropriate” labels. Trying to read this table. If I am reading it correctly, prednisone looks like it should be avoided. Do I have that right?

    1. Hi Motown,
      It is not the easiest of tables to interpret for sure. So you’re definitely not alone there.
      In the link I posted in the story, it takes you to the full study and there is much more detail into the methodology behind the table.
      From what I’ve gathered from the study, there was 2 separate rounds of doctors & scientists meeting to discuss “what we should do” regarding various UC/IBD topics with Covid-19 in mind.

      So for example, they had a large group of doctors/scientists answering questions, some of which are listed on the chart. And rarely did any of the listed items/ideas end up with 100% agreement from the participants.
      But, as an example from the chart, there was enough agreement that Prednisone increased the risk of Covid-19, so that particular item was listed as “appropriate” (which I interpret as “true”).
      For other items, it is uncertain.(meaning the doctors surveyed were not in full agreement or disagreement on the particular topic)(Azathioprine/6-MP would be be an example of the doctors not being in agreement either way and it is labeled yellow for “uncertain”.
      And so fourth.

      I know this is tuff to get out what you are looking for, but this is all relatively new. I would encourage to read parts of the actual study, here again is a link to an actual table with the data written out: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7194599/table/tblS2/

      Best to you,
      Adam

  3. Hey i have one question :
    I have UC and im having “imuran which is” azathioprine ” since tow years.. And im 27
    Am i in a risk if i got cov19?

    1. I think from the chart, at the second yellow square below azathioprine, it shows yellow, which indicates that the doctors who took part in this developing this chart were “uncertain” about your specific question. Definitely speak with your doctor for more recent ideas.

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