What should we all be making of the Corona Virus (COVID-19) and our respective IBD/ ulcerative colitis?
I most definitely do not have all the answers to that tall question.
But, together, I’m sure we can come up with some useful ideas.
The graph listed above I found earlier while searching on PubMed for some recent studies involving IBD and Ulcerative Colitis and the Covid19 virus. You can go to the webpage with this same chart here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7194599/figure/fig1/
I would definitely encourage you to read the whole study to give you an even better understanding of what some gastroenterologists believe to be the case, here is that link: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7194599/
Big Disclaimer: make sure to talk to your doctor if you have any concerns over anything in the graph or study from above.
As the overwhelming majority of UCers are using some type of medication to help control their symptoms, you have a good chance of seeing your medication listed with some recent opinions by doctors and scientists regarding how the virus may affect/effect you. Now bear in mind that not all the possible UC medications are listed, but there are quite a few.
What would be really interesting to learn is what you have been told by your gastro doctor, or the doctor who is treating/working with you.
And, of course it would be great to hear how some UC’ers have done with battling both UC and Covid-19 at the same time? Here are a few questions:
- How has Covid-19 changed the way you manage your ulcerative colitis?
- What are some interesting ideas you have learned from your doctors about covid?
- Any bits of advice that is covid-19 related?
- If you have had covid, did it affect your UC symptoms?
- Heck, what was covid like if you did have it?
It has been such a wacky year filled with lots of curveballs. I’m sure it is not just me who had plans fully derailed by the effects of the coronavirus. Maybe you had some lifechanges directly as well.
Stay safe everyone, and as more information on the Covid/UC topic becomes available, I’ll do my best to keep updates.
Happy Thanksgiving to the Americanos and wishing you all a nice week,
Adam
So I like UC’ers. That’s been going on since 2009 I’d say.
I started site and the eNewsletter(you can join that below) shortly after being diagnosed with ulcerative colitis in October of 2008 with severe pancolitis (when my whole colon was inflamed).
For me, it was a very rough start with severe symptoms. Getting bounced from medication to medication was not easy or too helpful. But, I did meet another UC’er, changes several parts of my diet, and of course the rest is history.
Leave a comment, ask a question, take advantage of our past experiences here, use the search boxes, they are your friends to0:)
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UC symptoms and flare ups don’t last forever and no two people are the same.
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I had Covid and I have UC. I didn’t have any Covid symptoms neither any UC symptoms.
My UC has been in total remission since I started taking methadone.
While I understand it has not been authorized for this use, I heard about it through the grapevine-and I have not felt this good in years!
Has anyone else tried or heard of this miracle, and why have there been no studies involving methadone?
Thank you and Happy Thanksgiving to all!
Hi Joanne,
Thx for sharing. It is interesting regarding methadone, I just ran a search of the site and the word only came up on a story from several years ago here:
https://www.ihaveuc.com/does-scd-work-my-daughter-has-colitis/
Perhaps other UCers are using it too but simply not mentioned.
That’s fascinating about methadone controlling UC. I wonder who researched it in the first place.
Wondering if someone can explain to me the “appropriate” and “inappropriate” labels. Trying to read this table. If I am reading it correctly, prednisone looks like it should be avoided. Do I have that right?
Hi Motown,
It is not the easiest of tables to interpret for sure. So you’re definitely not alone there.
In the link I posted in the story, it takes you to the full study and there is much more detail into the methodology behind the table.
From what I’ve gathered from the study, there was 2 separate rounds of doctors & scientists meeting to discuss “what we should do” regarding various UC/IBD topics with Covid-19 in mind.
So for example, they had a large group of doctors/scientists answering questions, some of which are listed on the chart. And rarely did any of the listed items/ideas end up with 100% agreement from the participants.
But, as an example from the chart, there was enough agreement that Prednisone increased the risk of Covid-19, so that particular item was listed as “appropriate” (which I interpret as “true”).
For other items, it is uncertain.(meaning the doctors surveyed were not in full agreement or disagreement on the particular topic)(Azathioprine/6-MP would be be an example of the doctors not being in agreement either way and it is labeled yellow for “uncertain”.
And so fourth.
I know this is tuff to get out what you are looking for, but this is all relatively new. I would encourage to read parts of the actual study, here again is a link to an actual table with the data written out: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7194599/table/tblS2/
Best to you,
Adam
Good to see a chart. But to us meer mortals what the hell does it mean? Inappropriate, appropriate and uncertain?? Help, non the wiser and more frustated
Hi Rhonda,
Does the comment i wrote above help you out with some answers to your questions?
And for sure, the whole thing is not crystal clear.
Best,
Adam
Hey i have one question :
I have UC and im having “imuran which is” azathioprine ” since tow years.. And im 27
Am i in a risk if i got cov19?
I think from the chart, at the second yellow square below azathioprine, it shows yellow, which indicates that the doctors who took part in this developing this chart were “uncertain” about your specific question. Definitely speak with your doctor for more recent ideas.