Hi my name is Roberta, and I’m from Puyallup, Washington.
My 12yr daughter came down with Ulcerative Colitis recently and I’m having a hard time dealing with this. I am so afraid for her. I just want her to have what used to be a normal life.
Just Allow Her a Normal Childhood and Life
My 12 yr old daughter came down with UC back in April 2014 on spring break. It took 3 doctor visits and 2 Emergency Room visits before I dragged a doctor in the bathroom to show her when I see my daughter using the bathroom.
She is in so much pain, she always cries and screams.
We went the next day to see an GI doctor and had tests done with results. It’s heartbreaking. I am so scared for her. She put my daughter on all kind of medications. One was prednisone that worked fast and made her feel a lot better but she was not happy with her big moon face. It was recital time.
Well she did the full time with prednisone but we started to get off them slowly by 5mg every week. Soon we hit 10mg/day and it came back. It was during one of her recitals. She loves dancing so she didn’t want to go home.
I been keeping and watching what she eats. It’s a big adjustment on the whole family. We are going back tomorrow to see the doctor. She was giving another medication. Plus she take an enema at night. Feel like I’m falling apart.
My husband is constantly on the internet with all these ideas that other people had luck with. Like having a juicer. No carbs and some herbs from India. He’s driving me crazy. We was suppose to go to New York this week but I cancelled until August. Now I am so afraid to leave this state with long airplane rides. I just want her to have a normal life. She won’t do sleep overs anymore. She seem to want to stay home. My teenage son is also very stress about this. Just need some one to talk about this. My family lives back east and I really don’t have anyone here in Washington.
written by Berta