I’m new to this site, I was diagnosed with Ulcerative Colitis in November 2008 and the colitis was all the way round to my small intestine.
Approximately 1 year before this I was in a car accident which I now have a chronic rib cartilage condition, so unable to work and then I got uc. Oh the joys of life…
I have been on various cocktails of medications: AZA, Asacol, Pentasa, Rabeprazole, Cyclosporine and now on Tioguanine which seems to be working at the moment. I have been seen by two gastro doctors the 2nd being a Dr. Ansari who apparently has spent nearly 10 years researching the affects of certain meds on UC. He told me that if I had seen another gastro I would have had to have had surgery which I did not want. It has been a long battle to get to this stage and I feel a different person to who I was 1 year ago. I got very low and depressed which every one near me noticed, but these last 6 months it seems I have turned a corner. I’m finally getting physically and mentally better.
I have been on prednesolone for so long it was starting to affect my bones so i had to have a infusion to coat my bones to stop them from getting any worse.
I have been on Tioguanine for approx 1 month and I feel so much more confident going out. The one thing i do find is that my concentration levels and memory has changed its not as good as it was before I had all these medications, the worse thing is when someone asks you a question and you know it ,but you just can`t get it out which frustrates you and the person who asked the question.
Ulcerative Colitis Medications so Far:
meds i have been on
prednesolone 80mg which i am still on 3 courses tapering since 08 now on 1mg
cyclosporine 600mg tapering 1st dose in hospital by iv (Not good, my vein collapsed during the 2nd dose)
tioguanine 40mg half in morning half in the evening
and some i can`t remember
Thanks for reading,
Steve aka “The Colonator”
Submitted in the COLITIS VENTING AREA