I am 30. I was diagnosed when I was 9. it was very hard for them to figure out what was wrong with me. in and out of the hospital , i also developed anxiety issues. I lived in Chicago when this all happened. it was horrible and scary to deal with as a child. luckily i have parents that care about me enough to help me . I’m 30 now and live in California i have a 3 year old daughter and am happy but would like to not worry about ulcerative colitis and would love energy.
UC didn’t change my life it is all I have ever known. I believe it has made me very strong in some ways but also a little scared child is others. I just moved to Los Angeles so I am not sure how I feel about my doctor but doctors usually don;t check my butt since I have had this for so long. My family helps if I need it i still don’t think they fully understand even though they have seen the worst of it. I am most concerned about not living my life to the fullest. i am also concerned that this might be passed down to my kids. No one in my family has this or any stomach issues. so not sure if it will be passed down or not but regardless i feel my kids will be effected by me being sick which makes me sad. i want to know if any of you have kids and how you handle it. if they are sad you get sick sometimes and what you tell them. i also want to know what everyone who isn’t able to work does about insurance in there area. also if anyone is in an y clubs or support groups.especially if anyone lives in Los Angeles area. i also want to tell people that uc isnt always the end of the world. and to stay positive I’ve been able to do almost everything ive wanted to do in my life sometimes i have to leave early and there have been mishaps but i think uc makes u a better person. if you have a kid you don’t mind if they poop on you jk. But it also makes me want to help people more and to let people know about us. trust me since i was 9 we’ve come a long way. research and so many people are coming out to find they have uc. sad but true.
Where I’d Like to be in 1 Year: