Hello my name is Sally and I was diagnosed in 2008 with UC. I think I am finally on the correct site to post my thoughts and concerns.
Some more about Sally:
I was in the wine trade for many years and was in buying and selling wine. I did a lot of tasting too.
I have encountered huge stresses in my life and my UC came on after over a decade of these. I live in the UK and am British. I also lived in NZ for about 4 years.
I am currently not in a flare and take Ayurvedic medicine daily plus vitamins and minerals and a probiotic .
Sally’s Story and her Hereditary Question about Ulcerative Colitis
My main reason for writing today is not about myself but about my son.
I am really concerned for him as he is 19 and has recently noticed tiny amounts of blood and loose stools over the past few weeks. He suffers with a lot of anxiety anyway and it seems to be worse when he worries.The doctor did a stool test and now he is being referred for I believe a colonoscopy with biopsy, I believe to rule out the chance of him having Ulcerative Colitis.
I just wanted to ask if anyone has any knowledge about children being affected if one parent has it?
My consultant believed mine was brought on by a very large amount of unusual stresses and I may have a weakness as, very long distance , but my grandmother’s sister had 4 boys, two of whom had Ulcerative Colitis.
My UC started in 2008. I lost my first son through medical negligence at the age of 7 years. My first son who also was very disabled, also suffered with a metabolic disease, & died at the doctors’ hands through dehydration.
I had a very unpleasant divorce and my ex husband was difficult to live with and very controlling. After losing my son and my marriage breaking down, i had the misfortune to meet a new man who turned out to be a monster. He was an alcoholic and abusive. It was whilst knowing him and being abused and having immense fear, that I developed Ulcerative Colitis.
I have battled with it trying most alternative therapies . I found acupuncture to be helpful. I didn’t like taking the drugs- I had a very adverse reaction to oral steroids when I was first in hospital, and now won’t take any steroids. I have been on mezavante and Pentasa. The pentasa and budesconide foam were quite helpful during a flare. The Ayurvedic tablets helped the most. I don’t eat wheat but I do eat spelt and other grains I am now cutting down a lot on alcohol and now only have the odd glass here and there. I eat organic mainly and eat a healthy diet most of the time.
What Sally Takes:
I think I have already covered the things I take. However, I also take glutamine Glutamine Powder (on Amazon) and a prebiotic (highly ranked probiotic/prebiotic from Amazon) when I am going down ill.
Tiredness and stress make me worse and I am a bit of a worrier which doesn’t help me.
written by Sally
submitted in the colitis venting area