I’m a 42 year old male that has been dealing with UC since I was 15 years old.
I’m from Maine and has always lived in NE.
My Colitis Symptoms:
I having the bloody,mucus, loose,and 6-10 movements a day.
I have been on prednisone since May 2011 (60mg). My doctor started to take me off of the prednisone about four months ago. I just had an appointment last week and he had to up my prednisone to 40mg, and my 6-mp from 100 to 150m. He told me if this does not help he would like me to try Humria, after that if that does not work try Remicade. I do not like the meds Im on now, because 6-mp has the same warnings of Humria,and Remicade. The warnings on all three of these drugs are really bad. I’m thinking of having surgery. That is just as concerning as the meds. Does anyone have thoughts about medications or surgery would help out alot.
Like I stated above. I have had Ulcerative Colitis since I was 15, and now 42. During this time I have never had more then 9 to 12 month of no flair ups. I have lived with this so long you would think the problems that comes with UC wouldn’t brother you after 27 years. I’m thinking of going to Maine medical in Portland, Maine or down to Boston, MA. Each of them are about one hour away from me. I think a second opinion might help me out. Has anyone been to either of these hospital? The hospital in Boston I would go to Mass General. I’m thinking of these hospitals because a mass general has one of the best programs in the country and Maine medical is pretty good also. If anyone has any thoughts I welcome them. Thank you for reading my post and also thanks for any thoughts in advance. In closing I hope you all out there in UC land are doing good. I’m hoping for some good feedback and more posts in the future. thank you all for your time.
Where I’d like to be in 1 year:
I would love to be off all medications and no surgery, but I know that’s not likely
My Colitis Medications:
So far prednisone has worked the best , but also has not really worked
written by Chuck
submitted in the colitis venting area