HI, I’m Lynsey 22, from Ireland, engaged to a great fiance, looking to travel the world, start a family, and beat this disease. hope you enjoy reading my story!
I was diagnosed with ulcerative colitis in november 2011. I was a lucky one and only have it in my lower bowel. And when I say “only” I still wish I hadn’t got it at all. I see some people on this with severe cases it’s just so sad.
The doctors reckon I’ve had this around 8-9 years from my medical history (I’m so annoyed there was plenty of opportunites for the doctors to notice it). It was over a year ago I was booked in for a colonscopy but that week the blood and muscous had stopped so I decided not to go for it as I was too scared and suffered from severe panic attacks and depression. Eventually in November last I got the courage to go and lucky enough I did. When I heard what I had I didn’t know what to do, I was told so casually you have a type of bowel diease, we have no cure, and I was sent out to the waiting room to wait to see a nurse. I was terrified.
A couple of weeks later I was then diagnosed with a brain tumour. It’s treatable but going to be a hard road. Its left me infertile for now. When I actually thought it was the UC making me infertile.
But back to the UC, I’m basically wondering
other than pain relief and stuff,
how do people cope with the emotional side of it?
How do you deal day in and out being sick and wanting to do what you see your friends do? My friends are great but use the phrase “your strong you’ll be ok” alot and it really gets me because I dont feel strong. In fact I feel I’m struggling and fighting everyday. I’d just like a few tips on how to keep my spirits up and stay positive because I do know it’s so important to stay positive through all this or else we just let the disease take over us.. thanks for reading, sorry if hasn’t got enough information. I’ve never done anything like this.thanks.
I’m only on asacolon suppostitaries for now until the doctors decide my permanent meds. Im always getting a weekly vitamin b12 injection too which has helped a little for energy but not as much as id hope maybe in couple months.
written by Lynsey
submitted in the Colitis Venting Area