Help Me Get Off Prednisone

Introduction:

I am 29 years old and I was diagnosed with UC in August of 2010. I am from Houston TX and love it here.

Some more about me:

I like to stay fit , travel , love to ride motorcycles, i love outdoors like running hiking and stuff. Also love to read. I also like to cook different kinds of cuisines but recently not cooking anything i am not able to eat.

Symptoms:

currently experiencing loose bowels and bleeding

Help Me Get Off Prednisone

I was diagnosed about 3 years ago, prior to that i never really had any symptoms the reason i went to a GI was because i felt like i could not digest my food and i would throw up almost everyday. The doctor right of the back did a colonoscopy and then gave me a flyer full of information about ulcerative colitis. At that point i did not had any severe symptoms and the doctor proscribed me 2 lialdas a day. Six months after that I went to Cuba and came back and was feeling extremely sick 10 to 15 bowels a day with blood. At that point i tried natural remedies to get things under control ….acupuncture, homeopathic ,u name it i tried it all even Chinese herbs , nothing could stop the bleeding. I lost about 30 pounds and the doctor gave me prednisone. That got things under control and since then i been fighting to get off prednisone but failed every time.

I tried to taper in every possible way but as soon as i go below 10 my symptoms return. My GI also introduced this other steroid called budesonide about 4 months ago and told me to taper while being on it but yesterday i tapered from 10 to 7.5 and yet again loose stools then bleeding. Along with these medications i also take vitamin supplements and lialda and budesonide nothing really helps me to get off prednisone. Its amazing how things changed for me overnight.  I went from a perfectly formed stool to watery blood.

Whenever I see blood it just psychologically breaks me down

and I start feeling hopeless.

I was never on a very high dosage of prednisone i always started at 40 then went down every 2 weeks but mostly at 15 which kept me just fine. Help me people any suggestions for me. I tried EVOO also Bev’s l-glutamine powder and probiotics… seems like there is nothing i can do…i feel like the only thing that gets things under control is our beloved prednisone. I also never had any side effects from it other than pimples on my back.

Medications:

currently 7.5 mg prednisone
lialda
budesonide
multivitamins , vitamin D

written by Hammad

submitted in the colitis venting area