I am 40 yrs old Mother of 2 diagnosed with moderately severe pancolitis in Jan 2006. Work full time. Hate our toilets at work as they are cubicles and have gaps at the top and bottom of the wall ( I know you will all understand that one). Over doctors completely.
Started the SCD diet last Dec, working well when I stick to it, learning that is important if I want to feel good. Symptoms (bloating, cramps, bad diarrhea) still up and down have good days/weeks and bad ones – depends greatly on my attitude, stress levels and commitment to myself with regards to diet.
Seven years ago I started getting symptoms loose bowel motions that progressed to violent frequent diarrhea weight loss tiredness cramping bloating etc. I put up with this for 12 months in total. In that time I had 1 DR tell me it was IBS, the 2nd said I needed a colonoscopy which freaked me out so much I did nothing. So after 12 months and 10kg in weight loss I decided enough was enough. Colonoscopy done diagnosis UC and Sulfasalizine for meds – GP said take the pills you will be fine – OMG I had done some web searches and was not convinced with her comments and went home in tears, changed Dr too. Didn’t take to the sulfasalazine too well and ended up in A&E overnight on a drip (interesting experience). Changed meds to Mesalazine 1g sachets 3 times a day – worked a treat – for a couple of years. Then whether I remembered or not to take my meds started getting changes in bowel motions, loose, diarrhea etc. Last year or so have h ad 2 short courses of prednisone for flares.
Went to see a Naturopath for another issue and he has been a godsend, in the last 8 months he has done more for me and my UC than any DR. On the SCD diet (most of the time when I can resist the temptation to not eat something I shouldn’t – I am learning there are consequences to that!)
I have found I am susceptible to other illnesses very easily and harder to recover, does anyone else have similar issues?
Also how do your DR’s take to you wanting to coming off your meds – I have yet to deal with that.
Frustrated with the lack of information given to me on this condition.
Where I’d like to be in 1 year:
I would like to be med free and managing this beast of an illness as naturally as possible. I am over Doctors completely.
Sulfalsalazine – not a good experience
Mesalazine – worked for a while now less effective
Naturopath put me on the SCD diet and Probiotics definitely helping me.
written by Eileen
submitted in the colitis venting area