I know SCD is supposed to be the cure-all, but I’ve been on it now since April, and had to go back onto prednisone, and am still in a flare now. I have tried my hardest, done the intro diet at least 3 times… this week, even, all I’ve eaten is chicken breast, pureéd butternut squash, pureéd carrot chicken coup, home-made jello made with welches’ grape juice and home-made plain apple sauce with nothing in it. I am adhering as strict as possible, but am not yielding results like I was the first time I was on the diet.
I was keeping up hope that I was getting better, then this morning, for no reason, after a week of eating this way, there was more blood than normal in the toilet! I am doing everything right, supposedly, I even removed all of my supplements from my diet for this week. I am at a loss. I want to get better without being back on mercaptopurine, but it looks like it may not work for me.
I am starting to think, “maybe the strict form of SCD doesn’t work for me. Maybe I need more fiber.” So, maybe I still keep sugar, processed foods, and preservatives out of my diet, but what if I add in fibrous foods like brown rice, home-made whole wheat bread or something. They say that that helps some people, but not when you’re in the midst of a flare, which I am.
I am getting very discouraged right now. I feel extremely run-down from eating the way I am, am miss eating out with friends (that, I can deal with if I get results, but I’m not). What I want to know is, in the midst of a flare, is there any particular foods that people might use to help them that are not SCD legal, like high fiber foods? I just don’t want to do more damage than good if the SCD has kept me from getting worse than I am. I’m not talking about adding sugar back in but what about potatoes or brown rice? I know I’ve asked a similar question before, and many people said not to do it, but I am getting desperate and want to know if it has helped anyone in any way. Maybe I should add in more baked goods with almond flour (I’ve been not eating them for about a month now in hopes that it would help me)
My colitis is very near the anus. Very low down. I only have bright red bleeding, and only a few “blobs” in the toilet and on the paper when wiping. Sometimes the toilet water gets more pink than others (like this morning—but I had some D as well, where the hell did that come from?) most of the time it’s just red blobs of blood/poo in the toilet. So I know it is very far down the colon (at lest I have that going for me, right?) I even tried the vitamin E enemas… they didn’t help either :(
I am getting depressed, stressed and saddened that this isn’t helping me. I really thought that SCD would help. I need some guidance and support and advice right about now. All I want to do when I go home from work is sleep on the couch and cuddle up in a warm blanket… that’s not doing me any good. I am so tempted to just go home and make a big old bowl of brown rice and eat the whole darned thing and see what happens. The fear of ruining everything I’ve done so far is what keeps me from doing it though.