This is Bob, 60 years old from Baraboo, Wisconsin, I was first aware of my Ulcerated Colitis in 1995 for years I was treated with 500mg sulfasalazine. Flare ups have happened every two or three years. I now have a flare up for the last two years that won’t quit.
Some more about Bob:
I am a Great Grandfather of three boys with another on the way. A Grand father of two girls and one boy and a father of one Daughter.My kids all depend on me one day or another. I need to stay healthy enough to help all of them. I was born in Milwaukee Wisconsin but have lived in Surrey, England, y, Geneva Switzerland and Denver Colorado. Now I have returned to Baraboo, Wisconsin to be here for them.
My symptoms today are as follows I wake up at night to relieve my bowels three times early morning usually two to three more times. I am able to function all day long without any runs to the bathroom. I have no blood in my stool. I have been going to infusion center for remicade. My last infusion caused a severe reaction I vomited and froze up. I doubt I will be going back for any more infusions.
Great Grandpa with UC
My question to other Uc’ers. After remicade where do I go from here? Nothing my Doctor does seems to help me anymore?. I thought I would reach out over the Internet for ideas I really have not tried hard on my diet and feel ready now. My UC has no bloody stools I have very little pain, my day is usually ok. The issues I have is waking up at night to release the pressure in my bowels usually its very short and muddy. First thing in the morning I have to empty out two or three more times than my day goes pretty well. I really don’t want to make the ultimate final surgical move that’s not reversible because I just don’t think my life is that bad and I can deal with it. Speaking of flare ups after discovering I had UC in 1995 it eventually went away while taking Sulfasalazine two tablets twice a day Five years I had no problems then in the year 2000 another flare up that once again went away with the same medications 2005 once again another flare up with lots of blood in my stool, same treatment Sulfasalazine twice in morning and twice in evening eventually went away. Once again I had no flare ups for about five years than in 2010 back to massive inflammation and bloody stools. This time I was treated with steroids and Sulfasalzine. Two years later with another flare up I was given Remicade infusions which worked the first time and my stools went back to normal for about a year so I stopped the infusions and the flare up came back around 2013 and after restarting with Remicade nothing seems to be improving this time and I am getting a serious reaction so now I am done with remicade so now I am looking for non surgical answers.
Past treatments 500mg Sulfasalazine three in morning two at lunch and three in the evening. Remicade infusions about ten of them but due to a recent reaction they will be stopped.
written by Bob S
submitted in the colitis venting area