First of all, thank you to Adam for not only putting this site together, but for leaving my member name listed and ready to blog even though I have been MIA for a few months. :)
Back in March after frustration with my very expensive daily meds, Lialda, I opted to take myself OFF of all meds and begin the Specific Carbohydrate Diet. Well, let me be the bad example here. (lol.) I was so eager to live “normally” that I just dove into list of “legal” foods and called it the SC Diet. By the time I received my copy of Gottschall’s book, I was already hurting. I began the process in the wrong way. I would love to try this all again in the right way, but I first need to be in a better place.
This week is not a good one. I am back on steroids, soon to be 6MP. After a doctor visit on Friday I found that my condition went from mild/moderate to moderate/severe. My Colitis can usually be controlled using treatments of Rowasa. This worked so well because the worst of my UC was “immediately upon exit,” so enema meds works fast and well. When this failed to work this last time I knew something was up.
Sadly, my family and I have gotten used to the “running.” Mornings are always my bad time. The family all knows this. This time, I really got a full on attack. I have been incredibly weak, achy joints, dehydrated, at times unable to stay awake (… as a Mom, this cannot happen!)
About a month prior, my husband took me in to the emergency room for what I thought was OB/GYN-related cramping. I had NO unusual UC symptoms at the time. After eleven years of being diagnosed with UC, I knew just where and how my system is affected. The pain was not leading to any of the usual places. Regardless, after a CT-scan, the hospital wanted to admit me for my Colitis. I objected and requested to sign myself out immediately.
After this last doctor appointment I come to find that my Colitis has taken on a new area of my large intestine. This explains the poor response to Rowasa and the mystery hospital visit, which provided no other explanation.
Right now I am just waiting for some relief from the meds. I have been upset more than anything. It’s frustrating when this control freak can’t control her disease!