Hi,
My name is Amanda Bryan I am 46 and was diagnosed when I was 21 just after having my first child. Moderate Colitis was reconfirmed in July this year and this current flare is showing no sign of regression.
Some more background:
I have an animal care college and two children one of whom is a musician and actor and the other Figure skates. My only hobby is her i am afraid…. My son is too old he tells me so I am his greatest fan! my daughter is my entire social life.
Colitis Symptoms:
I have sore swollen tummy ( like a football) and blood some days none somedays some somedays its like mass murder has been committed in the bathroom! these are the days I despair. Its been 6 months now and nothing i do is having an effect.
Amanda’s Story:
Back then 24 years ago, I was put on Asacol mesalazine and Predfoam enemas which took me into remission and for the last 23 years every time i had a little vision of blood I popped myself back onto the meds and hey presto, so as soon as the blood disappeared I stopped taking the meds, no medical supervision!
I left all wheat and gluten out of my diet and brought it back under control. Each time, which I have to say was not many over the years it became a little worse and I always got a what I called an Itch on both my left and right side just under my rib cage which slowly and sometimes turned to a sting! lots of water meds and prunes I was always ok. Until last June, my bowels became explosive and then I began to bleed increasing to a few times daily and a tad weight loss and sore… the itch was sore. I tried probiotics and some kind of oil that is meant to repair mucous membrane, seemed to make me worse. So I stopped saw a specialist in July had a sigmoid and was placed back on asacol full dose, prednisalone enema once a day, which she took me off in September but I put myself back on in November and I am still taking. Due for a sigmoid on 19 Dec. Nothing is working, can anyone help me, I don’t think I am ever going to be well again for my daughter.
I would like to know why I can’t get to grips with the bleeding and what if anything is thought to help this stop. When you say EVOO really, or is it a special kind for taking and what is this L-? Sorry this is the UK, we appear to be very restricted in our education of this disease?
Medications & Supplements Amanda’s Using:
Asacol Mesalazine
Predfoam
Prednisalone enemas
Movicol
probiotic
buckthorn oil
prunes
written by Amanda
submitted in the colitis venting area
Amanda has been diagnosed with ulcerative colitis for over 25 years. She was initially diagnosed at the age of 21 after having her first child. She’s the writer # 1,133 on the site. If you have any colitis questions for her, please ask them in the comment section under her story!
