Getting Prego with UC/ Lialda

Introduction:

Hi Everyone!! My name is Jennifer I’m 29. I have an amazing husband of 5 years. No children yet :( I work as a registered nurse at a very busy hospital. I’m from New Jersey. I was diagnosed with UC when I was 10 years old. I have had this disease for a LONG time now!

My Symptoms:

Everyday symptoms are 1-3 times a day with normal to loose stools sometimes with blood and mucus, extreme fatigue and joint pains.

My Colitis Story:

Having UC for the last 19 years has been challenging at times. I have been able to live a semi normal life with this disease. In the beginning it was difficult because I was so young and scared. I would have to get up and go to the bathroom in the middle of classes several times a day. Finally the symptoms calmed down to just BM’s in the morning. I was able to attend school and graduate college. While in college I would have mini flare ups. Just lots of diarrhea when I was stressed out about an exam. My doc would put my on steroid enemas and that helped.

My husband and I like to travel. We have been on a few vacations. When I go away I always have to watch what I eat. Dairy makes me have diarrhea almost right away. So I bring lactaid enzyme and that helps.

I love my gastro doc, he is great and always answers my questions and concerns. I have been seeing him for the last 8 years. I hate that I have to get a colonoscopy every 2-3 years!!!!

My dream has always been to have children.

So after being married for 5 years we finally got pregnant. Then at 9 1/2 weeks I had a miscarriage. Which I have to get a D&C tomorrow. My question/concern is can Lialda harm a pregnancy? My GI doc says its safe to take but I really want to get your feedback. Has anyone taken this med and gotten pregnant? Has anyone taken this med and had a healthy baby?? Does having this disease affect a pregnancy? I was told that having UC does not affect a woman’s chance of getting pregnant. My doc even told me that many people go into remission when they get pregnant. He also said that very few women will have an increase in UC symptoms when prego. I wish I could just get off the medications and that diet alone would help!!!!

Where I’d Like to be in 1 year:

Symptom free!!! I would love to have a baby!!!

Colitis Medications:

I was on Asacol for many years. Then when Lialda came out I was put on that about 5 or 6 years ago. I take 2 tabs of Lilada at night and when I get flare ups my GI doc puts me on Rowasa enemas and cortisone enemas. The enemas help very quickly to clear up symptoms. Also the dreaded steroids, prednisone Ive been on that several times too! I’m not always symptom free however I have not had a bad flare up in a few years. When I get stressed out or have a life changing event I do get a flare up. Lialda overall seems to be keeping my symptoms under control.

written by Jennifer

submitted in the colitis venting area




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11 Responses to Getting Prego with UC/ Lialda

  1. Jamie July 31, 2012 at 4:45 am #

    Hey Jennifer! I completely understand your concerns. However, I had a beautiful baby girl at the age of 29 while on Lialda. I did have severe pre-elampsia and delivered at 32 weeks. My daughter spent a month in the NICU, but today, she is just as happy and healthy as all the other kids in her class (she is 2 1/2). In addition, I did pretty much go into remission while I was pregnant. Pregnancy was easy while on Lialda (however, I no longer take it b/c I was losing a lot of hair as a side effect).

    Good luck and best wishes! And feel free to let me know if you have any further questions.

    • Jennifer Gallant September 5, 2012 at 6:33 am #

      Thank you so much for sharing your experience with pregnancy :)

    • Jenny Mom
      Jenny March 21, 2013 at 8:33 am #

      You know, that is so interesting… I didn’t have UC symptoms until my baby was 4-5 months old, but I did have borderline pre-eclampsia when I had her, and she came at 36 weeks. I wonder if something in my body was already beginning UC and I just didn’t notice?

  2. Paula July 31, 2012 at 6:41 pm #

    Jennifer~
    Let me tell you how sorry I am that you had a miscarriage. It is heartbreaking and I will be thinking of you. I know about them all too well. I hope that you never have to go through that again. I am truly sorry.
    There is hope though!
    Yes you can have UC & deliver healthy babies. If you are concerned with the specific meds your on maybe try something different. Get it ok’d by your GI & OB. One that helped me was Apriso, which I started during my last pregnancy. It is said to be safer than Asacol. I don’t know much about Lialda though. I am one of the few that have major flares during pregnancy, I do not wish that on anyone! My first baby was 6 wks early & my second past due date :)

    Try to take care and maintain a healthy body is most important for you and baby. Please message me if you want to talk, vent or just need a bit of support during this time. I’ll check back with this post if you’ve responded.

    All the best and a big hug!
    Paula

    • Jennifer Gallant September 5, 2012 at 6:32 am #

      Thank you Paula!

  3. missmeg August 17, 2012 at 1:16 pm #

    Jennifer,

    I had a tough time getting pregnant but it wasn’t from the UC. Actually my UC cleared up during my pregnancy, but had a flare going into deliver at 39 1/2 weeks. The nurses just told me it was nerves, but I knew! I was on Lialda the whole time as well as having 6 Remicade infusions. She was as healthy as can be. Good luck. I know how tough emotionally it can be trying to get pregnant.

    Megan

    • Jennifer Gallant September 5, 2012 at 6:32 am #

      Thank you MissMeg for telling me your experience! It really helps to know what other UCr’s have experienced with pregnancy.

  4. Kelly September 4, 2012 at 8:58 pm #

    This is the point I’m at having UC and wanting a baby, glad I’m not the only one out there who has this dilemma of wanting a life beyond surviving. I’m starting with a new baby doctor in two weeks who went to school with my gastro doc so hopefully I won’t feel as stressed worring that I havn’t passed on a price if vital information. Unfortunately starting a new drug on Monday (mesalazine both oral and enimas) hate the rollercoaster of newmeds. But it’s great to get dome informed answers here from people with UC and babies <3

    • Jennifer Gallant September 5, 2012 at 6:30 am #

      Kelly, You put it perfectly “this dilemma of wanting a life beyond surviving”! Its amazing how much UC can rule over our lives. I hope everything works out with your new meds. I took both Mesalamine (Asacol) for many years and it did help me along with the enemas when I had flareups. After my miscarriage (7/26) I started with a flare up and Im still having one. The Doc increased my Lialda 2 tabs 2X day, and put me on cortisone enemas and mesalimine enemas. This is helping the flare up (blood) stop. Best wishes with your new OB/GYN doc hope you get great advice and get pregnant soon :)

  5. Kelly September 4, 2012 at 9:00 pm #

    *sigh , autocorrect made a mess of that

  6. Jenny Mom
    Jenny March 21, 2013 at 8:41 am #

    Hey Jennifer,
    I am so sorry about your miscarriage. How are you doing now? Did your flare go away yet? Have you tried to get pregnant again yet?
    I am 28, and my UC started after I gave birth to my first baby, so I am in the same boat as you now- wanting to get pregnant (again) but not sure how to approach it with UC. Thanks for sharing your story. I can tell you that about the time my UC symptoms started, my milk started drying up and my baby ended up way underweight and we had to switch to formula. So I would just advise you to know your limits. Yes, breastmilk can be best for a baby, but if it isn’t working for you… then it isn’t best for your family. Don’t feel bad about feeding the baby formula if that’s what your body needs you to do! (I had several people imply that I was a lesser mom for bottle feeding, when they really didn’t know the whole story.)
    Praying that you have a safe, easy, flare-free pregnancy next time! Let me know if there are any updates!
    Jenny
    PS- You have a great name! :)

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