Getting Fed Up Now

Introduction:

Hi my name is Mandy and I am 40 years of age and have had Ulcerative Colitis since 2009. my consultant said it is proctitis as its just inside the rectum, was diagnosed after sygmoidoscopy was have trouble keeping my bowl movements in!!! and having a lot of seeping and mucous and really bright red bloody stools, was given Asacol suppositires which helped a bit. but i am worse than ever now!!!

Some more about me:

I am from North Wales and work as a receptionist full time. I try to keep fit but am struggling with that at the moment, if I’m honest. I am 5ft 8 and could do with loosing a few pounds most people with ulcerative colitis seem to loose weight but i don’t seem to have?

My Symptoms:

I am currently running to the loo every couple of hours with intense feeling that i need the loo or I’m gonna have an accident! It seems to be about 30 mins after i eat anything i have to run to the loo and to be frank i just sit there spraying out blood!!! and sometimes very loose stools i do find the blood very distressing at times because it looks terrible. and the gas is just unbelievable.

Getting Fed Up Now

I am waiting for hospital appointment as i think i should be screened after 3 years however consultant doesn’t seem to think its necessary as he said proctitis stays in the rectum however what if its traveled, if he doesn’t screen me how does he know?

Also have very itchy skin and sometimes sore eyes, is this normal with colitis?

Just wish the bleeding would stop but it just goes on and on. I know flare ups can go on and on but this has been 5 months now and no sign of it stopping.

Just wondered if anybody else is having similar issues as the spraying of blood every couple of hours is just awful my family are wonderful and they do understand and so is my lovely man of 16 years but even so the wind is dreadful at times but i really can not help it.

Sometimes get bad back and get like a pulling pain on my left side but since this flare up i haven’t had much pain in my side, i seem to either have flare up and no pain or no flare up and lots of pain.

I have alot of bloating and my stomach some days makes me look about 5 months pregnant!! i find daily tasks a bit daunting sometimes because I’m constantly looking where the nearest toilet is, don’t really go too far can manage about an hour before i need the loo as long as I don’t eat anything beforehand, if i eat something then 30 mins later I’m back on the loo, cant really remember the last time i had a normal Bowel movement, as its watery or blood, really hope others can help and sorry for being so descriptive but i know others that share the same symptoms will be pleased that you are not alone.

Medications:

i have had Asacol prednisalone and messalane which I’m taking now but nothing is working,

written by Mandy

submitted in the colitis venting area