I was diagnosed with ulcerative colitis about a year and a half ago
I lost 30lbs after being initially misdiagnosed with a viral/bacterial stomach infection. Eventually went to the ER where I got my diagnosis via sigmoidoscopy.
I was given prednisone (responded well) and then given Lialda…I was flare free for a year but constantly forced to carefully consider what I ate, dealing with fatigue, but generally living a normal life. I dealt with occasional bleeding, loose stools, but fatigue was the worst. Then, I got hit with what I assumed was my 2nd big flare. The D came back with a vengeance and symptoms mimicked my initial flare. This time I had no response to prednisone. Took a stool test after a few weeks of suffering and it turned out I was diagnosed with C-diff. I was in a combo UC and C-Diff flare. It was miserable.
I was given a 14 day course of Vancomycin but was warned by doctors that it might not kick the bug since my immune system was comprised because of the prednisone, which they weaned me off quickly. I began to see improvement each day on Vanco, but as I neared day 14, I began to do more and more research. It was then I started learning about FMT (fecal microbiota transplant). Based off my research and conversations, I quickly learned doctors can’t do FMT without failing two rounds of antibiotics and they can only do it for C-Diff – despite all the promising data out there for UC and FMT.
Then, I found a physician that was willing to be my consultant to do FMT at home. I had no desire to wait for another failed round of antibiotics and if I were to “cure” my C-diff with that second round, I still would not address the underlying issue of my gut bacteria being out of whack.
My reasons for wanting FMT: 1: it could kill any remaining bad bacteria from CDIFF and, 2, the data for treating UC with FMT is VERY PROMISING.
I figured, why not not try to kill two birds with one stone.
My experience with FMT has been nothing short of a miracle.
Please consider finding a healthy donor , dealing with the yuck factor (it’s not bad at all, just like a hydrocortisone enema), and treating this disease at the source. I can’t promise the same results as I got but it is clear that there is a strong link between gut bacteria and UC. I happened to stumble into this treatment because I was diagnosed with C-diff, but I encourage anyone with UC to give this a shot. This could be your miracle as it was for me. Feel free to leave me a comment with any questions you may have.
written by Colin P
submitted in the colitis venting area