Fit 33 Year Old Diagnosed with Colitis in 2004

7 Responses to Fit 33 Year Old Diagnosed with Colitis in 2004

  1. KimberlyHI
    Kimberly January 22, 2013 at 11:47 am #

    Amanda you have quite a story!! Well I wanted to say Aloha from Kailua Hawaii, my husband is a marine and we are stationed here. I am 34 and was diagnosed in 2001, I took Asacol for many years. They took me off a few months ago and I am now on Remicade and Imuran. They think the asacol wasn’t working anymore. Odd, I actually miss the asacol and canasa, although the new meds have helped a lot with my flares!
    I had a baby in 2011 and was on 6 asacol pills a day throughout pregnancy and breastfeeding! I did so much research on it. The conclusion for doctors is it is better to be on the meds than to have a flare while pregnant. Regarding breastfeeding, my research and speaking to the OB doctors found asacol can sometimes give your baby diarhea but this is rare. As for my baby, she is now one and doing great, we never had any problems. I wish you the best on your degree and having that baby, let me tell you it is the most WONDERFUL experience ever. When I was pregnant I was high risk and had problems, none really to do with my UC, but despite all the discomforts and whatnot I enjoyed every second. And every second with her is the best. I had a lot of worries about having UC and having a baby. Including what happens when I have this baby and get sick? Now that I have her, when I did get really sick this past september, it helped so much to have her to keep my spirits up. It was like having UC was not so bad because even though I was so sick I had this little person who would literally stay in the bathroom with me and ‘talk” to me and laugh, she really helped me get through the flare. And my mommy instincts would not allow me to be so sick that I could not take care of my baby. I still found the strength to attend to her and I would nap when she napped. To hell with housework though!! :)
    The other thing…it is so discouraging to try to switch to a healthy lifestyle just to get sick! That is what happened to me. I used to smoke and drink soda and eat junk…then I stopped smoking and started trying to be healthier, added exercise, started drinking water…within a couple months of quiting smoking my UC symptoms started. Here I was trying to improve my health and ended up sick! Throughout the years I have gone through rollercoasters of smoking and quiting, indulging in the junk food, stopping my workouts, then trying to be healthy again, then going down hill again. Now, I am trying to get on that healthy track again. It’s a constant struggle though!
    So I am seeing the GI docs here at good ol giant pink Tripler Army Medical center. Aloha from Hawaii!!!

    • Active Amanda
      Amanda January 23, 2013 at 12:38 am #

      Thank you so much Kimberly! I think I flared less in HI because the climate is so mild (and perfect!) I was treated at Kapiolani medical center & I actually used to go to the CCFA support group meetings in HNL, just to meet others who have IBD, when it was still new & scary. Your connection with your baby is inspiring, makes me really look forward to being a Mom :) Aloha & Mahalo Nui Loa!

  2. Chris from Massachusetts
    Christopher from Mass January 22, 2013 at 4:29 pm #

    Hey Amanda =)

    Thanks for your story! I had trouble with constipation as well. Seems like a rare thing but I am hearing more and more people with UC suffer from it. Anyhoo I just give myself a warm salt water enema every morning and it cleans me out for the whole day. It is great. I know people have aversions to enemas, but I like to say (got this from a book) – “desperate times call for desperate measures” =)

    If you want more info on how I administer my enemas feel free to email me at christopherjabre@gmail.com.
    i would post it but it is so long that it usually sits in moderation for like days!

    I also do the SCD Diet – although I am a lot more meat focused then a lot of SCDers =) I find sometimes the SCD diet does not go far enough – at least for me –

    Peace,

    Chris

    • Active Amanda
      Amanda January 23, 2013 at 12:55 am #

      Hi Chris–
      I have only done enemas as-needed, but I don’t need them too often because my drug-of-choice is milk of magnesia. I swear by it, always cleans me out. If I’m “flaring” and can’t seem to go at all (I think the colon is swollen shut or something) then I just don’t eat anything solid until it eases up. Maybe you should post your process so people can reference it. Thanks :)

  3. bev January 23, 2013 at 10:31 am #

    Fabulous post Amanda!!

    That’s right…live the best life you can…even with UC…you only get one!!

    Cheers…and aloha to you, too
    Bev
    :)

    • Active Amanda
      Amanda January 23, 2013 at 1:52 pm #

      Thanks Bev :) It feels good to talk about having UC, because most of the time I try to down-play it and pretend my Asacol is equivalent to a multi vitamin–but having UC is actually a big deal, and it’s good to admit that once in awhile.

      • bev January 23, 2013 at 1:59 pm #

        :)

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