Financially Speaking – The Cost of UC

meet Sarah:

I have had colitis since age 17…was on 6mp and dipentum, then went off all meds for about three years…until I was bedridden for a month with severe joint pain…took the wrong meds which brought the colitis back. Beeen struggling between the joint pain, low energy, and borderline GI health for the past two years since that flare.

Some more about her:

My sister and cousin both have colitis…I pray that G-d spare the rest of my family!

Symptoms right now:

Urgency, constipation

Financially Speaking – The Cost of UC

I’ve just started Humira, and yes, it was alot less scary than I thought!

I’m single, and work part time in a private school.
Part time because I need time to cook my own food, some time to myself etc.
I’ve relocated from the South to live in New York and get myself on medicaide, because, I’m afraid of not being able to cover health costs, would I live anywhere else.
I’ve been living from paycheck to paycheck , and even embarrassed to say that I’ve had to ask my parents for money this year! : (

I’m wondering how do other UC’ers deal with the financial side of all this?
All the supplements and trying alternatives, already take up half my paycheck!
Am I doomed to live in New York forever, because that seems to be the only health option?
Am I doomed to live in such poverty because of my health?

I don’t expect to ever work in a public school, or government agencies/services. My expertise is education , I always intend to to that in a private school…
I believe not- but please explain how?
Thank you for all your time and support! It really means a lot!

My diet- still trying to figure out: No dairy, hardly any meat, no orange juice. I try to eat kale, only cooked vegetables, I try not to mix proteins and carbs. No processed stuff.

I try to exercise if I’m feeling good- that is not too tired, and joint paint aren’t working.
Just started taking enzymes with each meal. I also take zinc picolonate, folic acid, calcium/magnesiumD3, green algae, occasional good belly probiotic drink. Occasion ginger caps. I don’t eat fruit because I don’t have a taste for it- the most I’ll do is have juice. Working on getting the accepted liquid multi.

written by Sarah B

submitted in the colitis venting area