Hey everyone. I posted a very hopeful story on Adam’s awesome site almost a year ago along with some UC inspired artwork…https://www.ihaveuc.com/attn-people-feeling-like-uc-haswill-consume-your-life/ Im not writing to vent about my symptoms today because i dont have any (awesome), everything has been normal with the exception of a week long flare after a week of fairly heavy celebratory boozing for a reunion with friends…my dilemma is one that I knew I would face eventually….
I HAVE NO SYMPTOMS!!! SO WHATS THE PROBLEM???
Its been about a year on Imuran (6mp),
and it has worked perfectly. I don’t even have any of the side effects. I have all my hair (ALL OF IT-my scottish heritage shines through in this department). I can eat anything, although I often cook for myself, eat a lot of fish, veggies, and stay away from fast food. I have a few beers on average once a week. I have a cup of coffee every day… Its like I’m back to normal. What isn’t back to normal is certain parts of my mental health. I am aware of the increase risk in serious cancers for people in my age bracket who are on Imuran. All the studies I see say that “Teen and young adult males” are at increased risk of a particular deadly cancer (I recently turned 24). Thinking about this can be a serious bummer. Often I am able to block it out. I surround myself with good people, I have an amazing girlfriend who is extremely supportive, parents and family who are the same. I keep myself extremely busy with grad school doing work I am very very passionate about. Having these distractions is necessary for me to carry on day to day. I know this because every now and then I remind myself of my situation, my REAL situation and as a result bug hard. Like right now, for instance, its 4:11 am, and I’m giving a thesis topic presentation tomorrow lol. But this all nighter has nothing to do with thesis work (its all ready to go) its just because I once again reminded myself of these risks.
Anyway…none of the mesalimine treatments worked (my throat seemed to swell) I would like to give them another final go. I’m thinking that I will try SCD, the first time I tried it I was in the middle of my first flare which was really intense so I really never gave it an official go, but as Adams doctor said in his newest video, and as every doctor I’ve EVER seen says, they all want you to be on SOMETHING…and I know there’s a lot of hate that goes around about the evil drug companies and doctors just being their minion slave puppets, but I trust my doctors a lot.
So i don’t know, any advice? does anyone taking Imuran (6mp) or even remicade, especially around my age, think about this kind of stuff? If so how do you deal?
I’m still doing some UC inspired art so ill try and get in touch with Adam to maybe post some
Much love to everyone. remember, flares do end.
Where I’d like to be in 1 year:
Off Imuran? haha who am I kidding, I have no clue but definitely healthy
written by Jim
submitted in the colitis venting area
Diagnosed this past June(2011) with Ulcerative Pan-colitis. Suffered a major flare all summer long. Started feeling better at the end of august and was able to return to school. 3 months into school and finally in complete remission after being on Immuran for 4 months