Leslie C – “Currently I am in a state of remission from ulcerative colitis.”
Some more details about Leslie: I love to read, mostly self-help and spiritually inspired works these days by authors like Wayne Dyer, Depak Chopra and Louise Hay. I love to garden and work with growing things that respond to sunlight, water and love. I have a herb garden with lots of Rosemary (my favorite herb).Working with plants gives me a good feeling.
I have one son who is loving and supportive and a granddaughter who thinks I’m awesome. I feel gratitude every day for the gifts I’ve been given in the way of good friends and family who accept and understand my condition.
I was diagnosed with UC in 2009 and my first trip to the hospital with what I thought was the flu turned into a 9 day stay where they advised me that I would have to have a colostomy. They advised that I had ulcerative colitis which I had never heard of. I asked what caused it and they said they didn’t know. They also told me there was no cure. A nurse came and drew a circle in black magic marker on my tummy where the incision would be and sent my husband home with a DVD giving him the information that he would need to understand and deal with my colostomy. I was on morphine for the pain and steroids to stop the symptoms and I lost 30 pounds in 10 days. They began to feed me intravenously because I couldn’t eat. I truly felt like I was going to die.I began to examine my life and to look at all of the things I felt I had done wrong. I was terrified and cried a lot while facing the blackness and emptiness that lay ahead. I was wretched and had almost given up hope th at I could get better. Then a friend came to visit and gave me a book that when I began to read it, changed my life. It was called Journey to the Heart by Melanie Beattie.
I strongly recommend the book as a starting point to the healing process. I found it to be uplifting and it shed a ray of hope when I needed it most.
Medications and Treatments:
I am on a monthly infusion of Entyvio and I can’t say enough good things about it. I have basically gone into remission and am feeling great and showing no symptoms. There is no blood in my stool these days and I usually need the bathroom only once, in the morning when I get up.
Entyvio is new and targets specific areas in the gut and it works wonders for me. You start out with a half hour infusion every 8 weeks and then every 7 and then once a month. It’s an expensive drug and I have been fortunate in that my husband’s insurance covers my treatments.
[button link=”https://www.ihaveuc.com/information-about-entyvio-or-vedolizumab-new-medication/”]Entyvio Info[/button]
So keep a postive attitude is my advice.
Accept what is and believe that you can heal. Pray, meditate and be kind of others and to yourself. Connect to the source and get positive healing energy. Read that book and then all the others that you can get your hands on that deal with healing yourself. Eat healthy foods that your body can tolerate and avoid the foods that trigger your symptoms. My wish is for you to be well.
written by Leslie C
submitted in the colitis venting area
I was diagnosed with ulcerative colitis in 2009 and have been living with this disease in it’s varying degrees of illness symptoms ever since. It’s not pretty but I truly believe that a positive attitude and a real desire to get well have helped me a lot.