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Does It Actually Ever Get Better?

what colitis remission looks like

Introduction:

Not really sure where to begin! I am 25 years old from the UK and was recently diagnosed with UC (July)- well doctors are like 80% sure. I work as a finance analyst and I reckon my lifestyle is what got me here. Lots of stress long working hours and poor eating.

My Symptoms:

As I get worse again, I have pain in my stomach and just constantly going to the loo! I fear going out. Really bloated all the time.

My Story:

It kind of crept up on me and had no idea…just thought it was normal! Definitely been an eye opener. I was in hospital for a while and I felt I was getting better started to be happy again…was put on steroids. …i have come off them now…and i am getting worse again..

I have been told a gluten free diet may help…

I have just gone back to work- and they haven’t been supportive as they don’t understand the disease. You look fine on the outside but feel crappy inside!

I really want to try a new diet. not sure where to begin?

I am normally a happy out going person.  Now i feel its all over. Definitely feeling very depressed about all this. I rarely go out now and just don’t know how to explain to friends.  I feel embarrassed.
Our family doctor has been great.  However the waiting times at the hospital have been very long.  Just dealing with the hospital has been a big stress!
Family and close friends have been very supportive. I feel very lucky in that sense.

I am concerned about the future.

Does it ever get better? Without steroids?

I am so scared of UC becoming even more serious.
Can i do anything to help myself?
What are the symptoms like when UC goes into remission?

I am also curious- when other fellow UC’ers sleep does sleeping on a certain side trigger the need to go the loo? Literally i can only sleep on my back and my right. If i turn to my left i have to run to the loo! i find it very odd!

Also my skin has suffered during this time. my face has just been breaking out alot! Worse than when i was a teen.

I have also become a constant complainer!! please help!

Where I’d like to be in 1 year:

Able to go out without having to be scared to crap my pants!

Colitis Medications:

I was on steroids- which worked while i was i on them!
Asacol- i am on the max dose for this, I don’t think this works for me

written by Kelly

submitted through the colitis venting area