First off, I would like to say that I am so glad i came across this site, it has been helpful reading other’s stories of what they have and are going through.
Well I have had problems since 2009 but never thought it was ulcerative Colitis. I started having bowel problems trouble going and going more often, I ended up getting a fistula down around the anal. So i went to see my family doctor and he sent me to a gastroenterologist and he said i had hemorrhoids and abscess, he lanced the abscess in the doctors office the first visit and let me tell you it wasn’t pleasant to have done. So December 3rd 2009 is when i had surgery to have the hemorrhoids cut out. After the surgery i was in alot of pain didn’t have first bowel movement for 5 days. After that i was doing better each day. Then about March 2010 I started having problems with my stomach bleeding cramping, so i went back to my Gastroenterologist and he said i had a fistula and sent me to a urologist.
Well that was so wrong because the urologist had no ideas why and what i was there to see him for. Well I was so stressed out and tired i just gave up. So for the next year and half i dealt with the fistula and the belly pains, constant diarrhea. But then in March of 2011 I started having stomach pain that i couldn’t handle any more, going to the bathroom every time was just painful it was so bad i had to hold one hand on the bathtub, i dealt with if for 2 weeks and couldn’t take it anymore, I went to the ER and they did a anal exam and seen the opening of the fistula on the out side, so for two years i have been dealing with the fistula. They sent me to see a new gastroenterologist and right away after seeing the fistula he wanted a colonoscopy done in two weeks. So April 28th I had the colonoscopy done and after that the fistula ended up getting infected, I couldn’t walk or lay or sit for two weeks, I went to the ER 3 times in them two weeks and they called my doctor and h e said they couldn’t do anything until they get the results back from the colonoscopy. So on May 25th was when my appt was to find out, and sure enough he told me i have Ulcerative Colitis and also treating me for Crohn’s disease also. So I have been taking the 6 prednisone twice everyday, that is 12 of them @ 5mg, taking Azathioprine 50mg 1aday and Flagyl 1 pill every 8 hours, so been doing this for the first mouth but it doesn’t seem to be helping, my stomach is twice as big as it was in May, I bleed everyday from the Fistula, i have discharge coming out of my rectum, i have spasm going from my retum to my stomach. if I rub on both sides of my stomach i have knots (my dad says it is where my colon is inflamed. I don’t know if i can do this with meds. My appt is this Wendensday @ 10:30am. When my dad was 29 years old he got Crohn’s and was put on meds for two years and it didn’t help him so in 1984 he had the surgery where they took his colon out and has the ilostomy bag, So my dad knows what i am going Thursday. I will keep everyone updated after my appt on Wednesday.
Medications so far: Predinisone, Azathioprine, Flagyl
Submitted by: Jeff
Hi my name is Jeff and I am 34 years old, diagnoised with Ulcerative Colitis in May 2011, but also dealing with a fistula at the same time.