Diagnosed with Ulcerative Colitis Via Biopsy, I’m a Pilot and Can’t Afford Frequent…

By Talat on July 10, 2018 in Flares

My name is Talat and belong to Pakistan, I was diagnosed with Ulcerative Colitis by biopsy test.

I used Masacol for few months and then quit as I still had loose stool and was not comfortable.

I started using Ayurverdic Indian medicine and got better, but now I get frequent episodes of constipation and use medicine occasionally.

I follow a strict diet and plan to stay fit as I am a pilot and can’t afford frequent break downs. I prostrate regularly and frequently as a good Muslim, and My God is very kind on me.

I like flying and sports!

Currently I have quite a bit of constipation.

Talat’s Ulcerative Colitis Story:

My hemoglobin gets low after flares but surprisingly I get microscopic bleeding which is not visible mostly, so I keep getting it checked in blood tests. I get skin rashes, eye puffiness and some pain in my shoulder muscles, moreover feel some pain in my teeth as well.

I have not had a colonoscopy for 3 years and I’m planning to get it done soon. I have lost about 6 kg of my weight Which is probably due to use of vegetables and fruits. But overall I feel that I get tired early now, lost some vigor. I go to gym occasionally but do walk about 4 to 5 kilometers. Initially it disturbed my life but later I got adjusted with it and came out of that shock which was there immediately after my diagnosis.

Sometimes I quit medicines and just use laxatives to relief my constipation. I don’t know whether that’s correct or wrong, if you guys may give me some ideas or thoughts on that, it would be much appreciated. I am a bit worried too as I have 2 kids and praying that they don’t suffer from this problem. If you guys are interested , please do try ayurvedic medicine, it’s awesome, and available in the USA. Please advise me if you have some suggestions for me.

I shall be grateful to you.

Thank you again,

Talat

submitted in the colitis venting area

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Sharing is Caring

Mar 25, 2018 by Lily Totovian

Thank you for sharing your story and journey to remission Adam. I am integrating some of your ideas and asking more questions of my health care practitioners to get on my own path to remission faster. Also, the immediate changes I made in my diet has been encouraging to alleviate some symptoms.

Thank you again. I look forward to the next iteration of your cook book.

Must read

Mar 15, 2018 by Carly

City/country:: Lakeland, FL USA

What an amazing resource. It definitely opened my eyes to the world of UC. I love how realistic Adam was about all the different treatments, and the details of the struggles to get to remission. While it definitely wasn’t what I wanted to hear (I think we can all agree it would be nice if we could just wake up and feel better), it was definitely comforting to know I’m not the only one struggling hardcore to get to remission so that I can hopefully control my pancolitis with lifestyle and not medications eventually. The book had me laughing at times and in tears from being able to relate to the struggles. Thank you so much for writing this book. It’s been such a valuable resource in so many ways, including helping me learn ways to share information so my family and friends can have a better understanding of what it’s like. So again, thank you for this Adam. It is a must read for anyone struggling to gather as much information as possible.

My Biography

Jan 16, 2018 by Prinolan Govender

City/country:: South Africa

I honestly felt like you wrote my biography. I've lived my life the same way you did, eating, drinking and partying without having to worry. I did have signs along the way as well but didn't take to much notice to it until the blood showed up. I was diagnosed in October 2016 and at the time my GI told me it had nothing to do with my diet, so I lived my life the same way I always did. I've been trying many different meds without little or no results. After my 29th birthday in June 2017 I started feeling more sick and the weight loss had started, I've always been a skinny guy and ever since I lost quiet a bit of weight which has been something that just makes me feel more uncomfortable. I consulted a Homeopath in October 2017 and she started me on the Paleo diet, while researching that I came across your site and the SCD diet which I started in December 2017. I didn't do any of the diets a 100%, but I did start seeing results. I went a bit off the rails during the festive season while traveling but I'm easing into the SCD diet again and plan on going 100% this weekend. UC has caused a lot of stress for me but I've come to accept it and look at it in a positive way. My goal is to eat healthy, put some weight back on and start living a normal life again. I haven't let UC stop me from living my life although it has limited me, but thats all going to change! Thank you for sharing your story and being an inspiration to all of us.

Feeling lucky

Dec 10, 2017 by Kathryn-Jane

City/country:: Vancouver Island, Canada

I found this to be a very funny, informative book. It made me realize how lucky I am, as well. I haven't suffered anything like the severity of symptoms Adam has experienced, for which I am grateful - but that's not to say I haven't known the usual UC misery at times! As a wordsmith and grammarian, though, I wish the book had been given a more thorough edit. Maybe in the next edition.

Feeling crappy to happy

Nov 21, 2017 by Lynn

City/country:: North Carolina

The book was so honest and forthcoming about UC symptoms. It was almost like reading my own story since this journey began for me 2 years ago (no remission yet). I was starting to feel pretty hopeless about this whole situation but Adam’s book gave me hope that I (we) can take control of UC. I have been following the SCD and eating what Adam ate while in a flare. I can tell a difference! Still sticking with my docs medical plan for now. But, I am hopeful that healing is coming and that diet is the key. Thank you Adam for continuing th share your journey!

Thank you!

Oct 06, 2017 by Jennifer

City/country:: Toronto, Canada

Thank you so much for writing your e-book. I'm glad I came across it. I learned a lot. I realized that I don't like my GI doctor and need to find another one. She hasn't helped me at all. As soon as I was diagnosed with a mild case of UC back in 2009 I knew that I had to visit my Naturopath. I was not interested in taking any medication. I was prescribed salofalk enemas and I tried a few but when you keep having to run to the bathroom it didn't make any sense to me. I was prescribed the pills as well. I sat down with my Naturopath and we went through the side affects. My symptoms were less than the side affects so I decided not to take it. It has been quite a journey and unlike Adam I knew it had a lot to do with food. I'm sorry you had to suffer so much Adam. I gave up pop and any carbonated drinks, deep fried foods and aspartame/splenda. This seemed to help. I now think I need to take things to the next level. I just came across FODMAP and what Adam suggests. I'm also looking into Keto or Paleo. My stress levels are less currently due to a less stressful job and I realized that has helped. I take supplements like probiotics, digestive enzymes, fish oil, etc. Thank you so much for sharing your story Adam. It makes me feel like I'm not alone in this.

Bravo! We can all do it like Adam.

Aug 29, 2017 by Bonnie

City/country:: Toronto/Canada

Thank you for what you have done for the UC community! No words can express my hope when I read your website.

The books are purchased for my 21-year-old son who has been diagnosed with ulcerative colitis 3 weeks ago. His case is mild to moderate and inflammation occurs on the whole colon. The GI doctor in Toronto here did not give us any hope of finding a cure.

Feeling Crappy to Feeling Happy is written in an intimate way to allow the readers to walk the brave journey with Adam.

After ready your book, it boosted our confidence of finding a cure through alternative means.

I have read through the recipes and circled the ones that are ok during active flare. There are not many of them. I am preparing meals based on the suggested recipes. I requested Adam to provide additional recipes if possible. He got back to me with a new website which has more recipes. It also has videos of the latest research studies on UC. https://www.nimbal.org/blog/recipes

Adam, thank you again for taking the time and effort to share your personal experience of conquering UC!