Desperately Looking For Help

Intro:

I’ve been dealing with Gastrointestinal problems for 13 years – officially diagnosed with Ulcerative Colitis 4 years ago! However – I am COMPLETELY different than 99% of people. I get severely constipated and toxic.

My Colitis Story:

It’s so hard researching a lot of this due to the simple fact of – everywhere you look, main symptom is diarrhea. Hardly EVER do I see someone with crohns or UC that deals with constipation. I don’t really have alternating bouts. It’s predominately constipation. I’ve been med free since the get go although my life is still a living hell. I’m ALWAYS sick. Not sometimes, always. There is no such thing as a flare with me. It’s 365 / 24 / 7. Many trips to the ER, admitted to the hospital, 3 colonsopies, etc. They say severe UC, Colitis with deep linear ulcerations in distal rectum. Proctitis, etc. My problems have escalated a ton. Now I am getting HORRIBLE jolting pains all through my body, I have a 12 MM kidney stone. And to top it of, my anxiety is at an all time high. I feel many times like I am going to pass out – no lie. It’s awful. I hate leaving home. When I do go to the bathroom, every few days, it’s hard huge balls that are caked in blood and mucus. Desperately looking for help…….

Submitted by: “Colitis Dude”




Ulcerative Colitis Tips


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8 Responses to Desperately Looking For Help

  1. Bethany April 26, 2011 at 8:14 pm #

    I do not have UC, however I suffered with terrible constipation – similar to what you described – my whole life. I’m glad to say that I’m completely regular now and I believe it’s because I started taking Nordic Naturals Ultimate Omega on a daily basis (pricey yes, but gives major health benefits and is the best on the market). If you’re against medication, perhaps a homeopathic remedy is more your speed. I recommend looking into taking omega oils, ground flax seed, acidophilus or other probiotic, and vitamin D.

  2. Ashley April 27, 2011 at 3:33 pm #

    I do have the more common severe UC. I thought I had tried everything until I went on a juice fast (I am currently on my 3rd day) For the first time in 6 months I had a normal bm today. What I can’t believe is how many bm’s I still am having even without eating solids. So, perhaps many of us with UC have some constipation along with diaherrea, it sounds like an oxymoron but that is what I am realizing. It may be worth you trying a juice fast too. Hippocrates, Socrates and other philosophers swore by it and said that our bodies are self healing and if we give it a break from food it can focus it’s energy on healing instead of digesting. It is working for me, maybe it will for you too!

  3. Rodney April 27, 2011 at 7:24 pm #

    What sort of juice fast? Fruit? I’m trying to avoid the sugars – they seem to make me worse.

    I started a FB page as well.

    http://www.facebook.com/pages/Colitis-DUDE/196347190406668

  4. Peter NZ April 27, 2011 at 10:11 pm #

    Maybe also talk to your doctor about a course of prednisone? Try to heal those ulcers and get your bowel working properly again.
    Good luck,
    Peter

  5. Dede April 28, 2011 at 7:47 am #

    Dear Colitis Dude–I, too, suffered for years with constipation–I have Crohn’s but i wanted to suggest my book to you–I always feel like a self-promo type of person when I suggest my book, but what the heck, it is out there and helping lots of people, so it is meant–not in a marketing way– but in a caring way… I think it might help! I have a regimen of diet and lifestyle support that might work! It is called “Living With Crohn’s & Colits: A Comprehensive Naturopathic Guide for Complete Digestive Wellness” — the reason I would recommend my own book is that I had identical problems! I did go on Prednisone, as Peter NZ recommended–and that helped settle things down–I was even on Cipro for a time; but, after my surgery, I really got serious about wanting to stay healthy…. All the suggestions above are great: Omega Fish oil, probiotics, and I swear by (nightly) two tablespoons of Flaxseed ground up and mixed with water–this keeps me from getting constipated and makes things very regular–such a blessing for us UC and Crohn’s sufferers! Hang in there–don’t despair!

  6. Tony (UK) April 28, 2011 at 4:06 pm #

    Hi Colitis Dude, Can I back up what Dede has said, my original diagnosis way before I was ever diagnosed as having UC and Crohn’s was IBS and the symptoms of that were severe constipation, tiredness and stomach cramps. I was on laxatives for ages but even those did not seem to help, it wasn’t till I had the most distressing symptom, blood and loads of it that a colonoscopy and endoscopy revealed UC and Crohn’s (although I had had an endoscopy a few years prior which the consultants told me had led them to believe I had IBS). Due to the medication I now take, prednisolone, mezavant xl & other assorted concoctions I don’t get constipated but food still seems to take its time passing through my system which, I assume is why I still get pain. Dede’s book of which I have a copy, is full of helpful advice, I’m not selling it for her but I’m sure it might help you as much as its helped me.

  7. Rodney April 28, 2011 at 5:30 pm #

    Tony-
    I will probably be getting it. The book helped you but your still taking heavy meds?

    Join my FB page. A group for people with crohns and colitis.

    http://www.facebook.com/pages/Colitis-DUDE/196347190406668

  8. Helen May 4, 2011 at 10:30 am #

    colitis dude, i have been dealing with severe constipation since my teens, i was diagnosed with Uc six years ago at age twenty two. I am either severely constipated or having severe diarhea always with blood, cramps, spasms and pain. If i follow a low residue diet to slow down the big D i end up getting hospitalised with impacted bowel. I am currently in hospital and xrays show i am constipated once again even tho i am having very loose stools up to thirteen times a day. U are not alone. I would defintely think about the juice diet but i can tolerate orange juice or fruit with acid. I break out in a rash and get cramps. Life with UC ain’t easy I think we are all troopers :-)

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