Hey,
To get in contact, please send an email to ihaveuc@ihaveuc.com
Thank you for using the website.
In good health,
Adam Scheuer
colitis patient – site admin & author of Feeling Crappy to Feeling Happy
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Hi Adam, I tried searching HPylori and Ulcerative Colitis on your site before contacting you didnt find much though. Ive had Ulcerative Colitis for about 10 yrs with remission, mild flairs and 2 full flair in between. i was flairing mildly about a month ago and then all of a sudden it hit me: diarrhea, gas cramps, bloating, and nausea. i dont feel it in my colon though. my dr is running test for HPylori, just because i asked! My question is has anyone took antibiotics for that with Ulcerative Colitis and what was their experience?
I took lot of antibiotics for couple of years till last year. I stopped using it since I got mouth ulcers last year after taking antibiotics. I instead used probiotics that also contains saccharomyces boulardii and also strong probiotics VSL#3 and it helped me. Whenever I had mild flare I used it and it helped.
For a month now I’m having mild flare now and then, not regularly. I tried same probiotics tactics but it’s not working properly like before. Just few days I started taking mastic gum. I hope it will work out.
I have done all the blood and stool tests. Everything is normal, except there is RBC in blood. Inflammation is below <3.
Hello i was just diagnosed last week with colitis, was in the hospital for 4 days. I need to know if anyone suffers from leg or joint pain from this, ive never been so miserable thank you
Hi Linda,
Unfortunately, joint pains are very common with us UC folks. Here is a survey that we did not too long ago that has many different ideas and personal stories of UC/Joint pain.
https://ihaveuc.com/99-person-colitis-joint-pains-survey/
Wishing you the best with getting the joint pain under control SOON!
(For me, I have had joint pain on and off for years now, recently in the past few years, it has been dormant so for sure it is possible:)
Best,
Adam
Hello Adam. I’m Maria . My UC started 3 mth ago. I’ve been in hospital for 12 days , just got out. My consultant said the flare up has gone down. He’s sent me home with steroids & Pentasa along with a few other things. My Q is , can a flare up still happen anytime , even on the steroids/Meds . I have a family occasion coming up & im really nervous about eating out & drinking alcohol.
Hi Maria,
Some people have certainly had symptoms worsen even while on steroids, but by and large, symptoms should find ways to get better on steroids as you know.
As for other medications such as 5-ASA meds and others, yes, flare ups can unfortunately still happen.
I wish you the best,
Adam
Hello guys,
How many of you have taken mastic gum so far ? What was the result and how did you take it and how long? What was the dose? Is it OK to take it together with probiotics?
I’d highly appreciate for your comments.
Best wishes from Finland.
sorry for spamming here, I tried to answer the newsletter but I got the email returned…
Hello Adam,
jak se máš? :)
I am also from CZ and my husband is from Slovenia. Se I know rather well how is to have some language barriers in the family :) But all improve with a a time.
I have UC too and I started to follow your posts rather recently. It is cool what you do. I believe that many people need to know that they are not alone and that every situation has a solution.
I tried to eat according to SCD diet, but I failed few times. I did not give up yet – I am going to try it again for sure (as soon as I deliver a baby which I carry for some months already :)). However I wanted to ask you for an advice – if I may be so spunky…
I would love to reach a point in my future when I would be able to eat raw vegetable and fruit (so far only cooked and only some types). It is my goal.
Can you please advice how did you start with SCD diet? What was “the right way” to proceed? And after how long did you start to eat raw food? I need a bit of hope here :)
Thank you a lot!
Many greetings from CZ and let me know when you are here! :)
PC: California and Colorado are amazing too – I was there once for a trip and I definitely plan to return.