Hey! I am CJ. I am a freshman college where I play baseball while studying physical education. I am from the Hampton Roads area of Virginia. I was diagnosed with left sided ulcerative colitis in 2009. Have had one major flare since diagnosed where I lost 20 pounds in two weeks.
Die hard Yankees and Giants fan.
Minor flare currently:
Blood in stool
a little fatigue
The Baseball Player with Colitis:
UC has changed my life dramatically, from diet, exercise, and knowing where all bathrooms are at, at all times. After suffering my first major flare in the spring of 2012 I realized how serious this disease really is. I lost 20 pounds in two weeks, lost complete appetite, lost almost all of my physical shape. I could not run with out running/ waddling to the bathroom. This disease has caused me to stop at a seven eleven two minutes from home just to go so i didn’t leave my truck a mess if you know what I’m saying. Though I found a way to play the rest of my season and helped lead my team to states, even after many close calls about to pass out after long innings. My family has been very supportive and looked out for me. I also have had great friends who came and visited me when I couldn’t get out of bed on the weekends from such fatigue.
When it comes to my doctor I’m pretty comfortable with him but I would like to get out of the military system where i have to go through a hotline just to reach my doctor for questions regarding my illness. Which brings me to my concerns of what if its spread throughout my colon since my last colonoscopy was when I was diagnosed. Also how long it takes before my body becomes immune to the medicines I have been taking it since I was diagnosed. I am also very concerned about how well my UC is controlled or lack there of. Second flare this year prior i had two until this year.
I am a very picky eater and tend to cheat my diet by eating fast food and spicy food I know will tear me up. Its just too good! That’s one area I need to improve on. Anyone have good suggestions?
For any athletes what medicines have worked best for you?
Remicade users. What do you think about the medicine?
Has anyone had left sided go to pancolitis?
How have you used UC positively in your life?
How are other athletes dealing with this disease?
Where I’d like to be in 1 year:
In one year I would have my ulcerative colitis in remission. Along with a better immune system to fight of illnesses such as strep. I would like to increase awareness among my friends and community about UC and Crohn’s. I would also like to meet someone else on my campus with the same disease.
Ulcerative Colitis Medications:
know about you with regards to colitis…
For Example, which medications do you think have worked the best/least…why?
Colazal 3 pills 3 times a day maintenance (been on since diagnosed)
Enemma for flares
Predisone works but kills me emotionally
Oh and I hate cleanouts
written by CJ
submitted in the colitis venting area