Colitis Joint Pain

I have had this condition of ulcerative colitis for 10 years now. It has put me in hospital twice. Sometimes I take medication,but at the moment I am having quite a lot of joint pain in my arms mainly elbow joints.  I would like to know if other sufferers of colitis have this same type of joint pain problem?

-Tim

Information about Joint Pain:

Joint pain can be very distracting and even painful at times.  It is something that can happen in one or more joints all over the body.  This type of pain can happen anytime during the day.  For some people with joint pain it occurs at specific times of day such as in the morning or at night while sleeping.  For other people, the joint pains can happen throughout the day at very random times.  There are several causes of joint pain, and one that is listed by the National Institute of Health is autoimmune disease.  Ulcerative Colitis is considered an autoimmune disease so this might be part of the connection as to why so many people with colitis complain of having joint pains at different points in time.

With regards to joint pain and ulcerative colitis, many people with UC have felt that the joint pain has become more bothersome to quality of life than the “traditional” UC symptoms at times.  With the help of everyone sharing their stories on joint pain and how it affects life, hopefully we can all come up with ideas on how the joint pain can be fixed or made easier to deal with along with UC.  What is most puzzling to some people is how the joint pain can exist even when colitis symptoms are in remission.




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6 Responses to Colitis Joint Pain

  1. mrcranky November 26, 2010 at 10:40 am #

    It’s funny, I could have written that original post about my own experiences.

    I was diagnosed with UC 10 years ago but have suffered symptoms for more like 20 years on and off. I started getting joint pain about six or seven years ago and since it was initially in my shoulder, which I had dislocated years earlier, I thought it was due to the old injury. Then I got it in my big toes, and started thinking I had gout. Tests came up negative. Then I started getting it in the hands and hips, and attributed it to getting older (I’m 42).

    This fall, I got it in the elbows as Tim describes. Over the last two months, it has been so bad I have had days were I was almost non-functional with pain. It culminated with a colitis flare up a week ago, which is now subsiding, and the pain in my elbows is tapering off. I have tried Motrin and Tylenol, which help some, but not enough when the pain is particularly bad. I also tried Aleve, which is very effective on the pain but is contra-indicated for IBD sufferers. It can cause lesions and ulcers in the gastrointestinal tract, which no colitis-sufferer wants. I found that although it helps the joint pain a lot, it makes the gut-wrenching stomach-gurgling colitis symptoms noticeably worse.

    I’m off to talk to my GP doctor about this today, and I may ask to see a rheumatist about the joint pain.

  2. Valerie November 26, 2010 at 2:28 pm #

    Hi,

    I started getting joint pain in old injured joints 3 years after I was diagnosed. The knee that had an ACL Repair done 13 years ago and the ball of the foot that got hit dead on by a line drive. I was told it was uric acid build up by the ladies at the local health food store. I did a little research and found out that the uric acid build up was because I was in the midst of a flare that just kept giving (we are on month 14). I started drinking tarte cherry juice concentrate twice a day and within three weeks I was like “what pain”. I also found it helped reduce the uncomfortableness in my belly. I use Dynamic Health Laboratories Inc 100 % Tart Cherry Juice concentrate. 3 tablespoons in a glass of club soda twice a day. If you want, add honey to make a cherry soda!!!

    Some of the benefits include a balancing of your PH, improved sleeping and Reduction of ALL inflammation. I can’t seem to find the link that talks about a zillion healing properties. This stuff is high in antioxidants too.

    I bought it online at Amazon for the best price and will continue to search for better. I found dynamic health to be the best brand for me. It can get rather expensive I go through a bottle in 5 days.

    I hope you feel better soon. I remember not being able to sleep because the sheets irritated the sore areas.

    BTW – I am 42 too. I get real tired of hearing this is just what happens when your over 40. I think it’s a cope out when folks, including docs, just don’t know what to say.

    Take care,
    Val

  3. Carol November 26, 2010 at 9:24 pm #

    I too have a lot of joint pain, some days it is worse, sometimes better. About every 4 months, I go on prednisone for a few weeks and I can function normally. The effect of the pills seems to last for a few months which is great. I am going to try the cherry juice to see if that will help me so I don’t have to rely on the steriods.

  4. Adam
    Adam December 1, 2010 at 11:35 pm #

    Hey, Has anyone ever found sleeping with warm clothes on helps reduce the lower back joint pain stuff?
    i seem to be on two days of success with just simply wearing a long sleve shirt to bed instead of my usual wearing no shirt. not sure if its a two night in a row coincidence or what. But, I’ve had probably three weeks prior of waking up anywhere from 2am-4am with the joint/lower back pains, and last two night slept through without waking until my 6am alarm…
    any thougths anyone?

    • Valerie December 9, 2010 at 6:46 pm #

      Abosolutely Adam!! I have gone to bed with a heating pad that I shut off just before falling asleep. I have been told by accupuncturists and craniosacral therapy people that the moist heat is good for UC/CD. It helps the healing. And at the risk of sounding like a nut case, it also helps if you believe in your bodys healing power.

      Take Care,
      Val

  5. anne July 31, 2017 at 7:14 pm #

    WOW! I have had this disease since Dx at age 11 and now that I am older, (Eeek), I have begun getting these horrible leg, hip, back pains too! i honestly thought I had bone cancer or something but after reading the above, I am not worried about that. I do go to the gastroenterologist tomorrow and will bring it to his attention as well.

    What has helped with these secondary health issues is warmth at night — I use a heating pad which helps. My pain medicine for the UC does not work for this type of joint pain but things like motrin and aleve do help but they create havoc with my tummy, Everything seems to get worse with prednisone (but for the colitis) and for a certain period after taking the prednisone. I do know that uric acid makes it worse so perhaps something that counters uric acid may help

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