Hi I’m Sue and I’ve had ulcerative colitis for years. I have only ever been on pentasa slow release tablets 8 a day and when I have a flare up pentasa suppositories and pain killers for the aches in my body I am 56 and had this since I was young.
My current symptoms I’ve been bad since Xmas bleeding for 4 weeks and since then the whole of my body is aching.
Aches and Pains from Colitis
I have been in hospital a few times since Xmas. I have been really bad, my legs have gone worse. I have pain in them every day. At night in bed they burn up and my knees really throb some days. I don’t even get up. I just feel so sick all the time. Since Xmas, my ulcerative colitis has really got worse. I haven’t been to the doctors. I’m not up to going but I have been on steroids which didn’t really help.
I feel like I am slowly dying. There is nothing I can do if I try and go to the shops I’m in bed for a week. If I clean up I’m in bed a week.
Any thing I try to do puts me in bed.
I am sick of being sick.
I was wondering if any one else feels like I do
and I wish I’d never herd of UC?
My doctor never checks my butt, I only see a consultant if I am admitted to hospital. I feel like I am waisting my life just sitting waiting to die because there’s nothing I can do. There’s so much I want to do instead of sitting round doing nothing it’s s o hard coming to terms with this illness I also have asthma and COPD. I have had cancer in my right breast and thankfully got over that for now. Great isn’t it, you can get over cancer but not ulcerative colitis.
I am feeling pretty down at the moment. I know there’s other people like me with UC, I suppose I’m just feeling sorry for myself at the moment. But it’s so hard to just get up and do what I want to without aches and pains just lying in bed all the time is doing my head in.
written by Liverpool Sue
submitted in the colitis venting area