I’m Susan. Both my husband and son have inflammatory bowel disease. My husband has Crohn’s disease which was diagnosed when he was a teenager. They thought his initial attack was appendicitis and when they operated, saw it was Crohn’s and did a resection at that time. When our first child of four was a toddler, he had another resection because the pain was interfering with… Read More »21 Year Old With Crohn’s Disease
Nearly everybody who has ulcerative colitis has parents. And more often then not, when people with UC are diagnosed initially, they tend to be at the early stages of their lives.
So, that is the reason for the section of the website devoted to parents of kids who have ulcerative colitis.
Some of the stories talk about the decision making that these parents are in the middle of, especially with regards to different types of treatments mainly in the form of medications and potential surgery that they are all faced with. None of this is easy decision making, but these stories should help to provide other parents with the reality that there are many others in the same situation.
I’m young mother of 3! I live for my children, I’ve lost 3 babies and had 3 healthy babies so I am blessed. Hi everyone, I’m 26 years old but I was diagnosed with UC when I was 18. At that time it was under control. Since i had children my whole patterns has changed. I’m frequently soiling myself as I’m not having any warnings… Read More »Help, I’m A Mom of 3 Great Kids and I Have Colitis
My Son Has Ulcerative Colitis Our son is 22 and was diagnosed with severe Ulcerative Colitis in May of 2010. He has been on prednisone and Apriso for the past year and Imuran was also added to the list 5 months ago. As soon as he gets the prednisone lowered to 10 mgs his bleeding starts all over again. Then he has to up the… Read More »Worried Parents
I’m looking for information from others or from parents whose child has UC and what medication successes they have had. Also if the child/teen has tried SCD diet and if so with what success? My daughter was diagnosed last October at 14 years old. Prescribed Asacol and prednisone. After about 4 months she was weaned from the prednisone. First flare up was in July 2011… Read More »My Teenager Has Colitis
I was diagnosed with very mild ulcerative colitis 15 years ago and have had very mild and easily treated flare ups until last summer when my daughter got sick and was diagnosed with Crohn’s Disease, I had a terrible flare with all the stress of my daughter being sick, doctor thought I might have to have my bowel removed but I eventually went into remission.… Read More »Optimistic Ulcerative Colitis Mother